Prader-Willi Syndrome Association (USA)

Nonprofit or community organization

Right now we don’t have any job openings, volunteer opportunities, or upcoming events.

Log in or sign up to be among the first to know when new openings or events are added!

About us

Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.

Prader-Willi Syndrome is the most common genetic cause of life-threatening obesity in children that has been identified.

Prader-Willi is a tragic syndrome that impacts everyone involved. Persons in the community that come into contact with a child with PWS are often overwhelmed with their weight and behavior, while the family of the child is overwhelmed by the lack of community resources and support. Experience has shown that awareness and early education can prevent obesity-related deaths and years of isolation and emotional trauma to the family and child.


Contact information

Government ID number: 411306908

Email: Log in to view email addresses.


Phone: 941-312-0400

Fax: 941-312-0142

8588 Potter Park Dr, Ste 500, Sarasota, FL, 34238, US

See map
Do you work for Prader-Willi Syndrome Association (USA)? Become an administrator