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The Huntington’s Disease Society
of America is the premier nonprofit organization dedicated to improving the
lives of everyone affected by Huntington’s disease. From community services and
education to advocacy and research, HDSA is the world’s leader in providing
help for today, hope for tomorrow for people with Huntington’s disease and
their families. At HDSA, family is everything.
What is Huntington’s Disease?
Huntington’s disease is a fatal
genetic disorder that causes the progressive breakdown of nerve cells in the
brain. It deteriorates a person’s physical and mental abilities during their
prime working years and has no cure. HD is known as the quintessential family
disease because every child of a parent with HD has a 50/50 chance of carrying
the faulty gene. Today, there are 30,000 symptomatic Americans and more than
200,000 at-risk of inheriting the disease.
Soon after legendary folk singer
Woody Guthrie lost his battle with HD, his wife, Marjorie, sought out other
families affected by this devastating disease. In 1968, a handful of dedicated
volunteers formed the Committee to Combat Huntington's Disease, which would
later become the Huntington’s Disease Society of America.
Mission of HDSA
To improve the lives of people
affected by HD and their families.