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About us is the world's leading private funder of basic, translational and clinical Rett syndrome research, funding over $38M in high-quality, peer-reviewed research grants and programs to date. Annually, hosts the world's largest gathering of global Rett researchers and clinicians to establish research direction and priorities while exchanging ideas and the most recent information. is the most comprehensive non-profit organization dedicated to providing thorough and accurate information about Rett syndrome, offering informational and emotional family support, and stimulating research aimed at accelerating treatments and a cure for Rett syndrome and related disorders. IRSF has earned Charity Navigator's most prestigious 4 star rating. Mission Statement

The core mission of the is to fund research for treatments and a cure for Rett syndrome, while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.


Contact information

Date Founded: July 2007

Government ID number: 31-1682518

Email: Log in to view email addresses.


Phone: 513-870-4378

4600 Devitt Drive, Cincinnati, OH, 45246, US

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