Niemann-Pick Disease Group (UK)

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About us

The Niemann-Pick Disease Group (UK)is an international, self-help support group which was granted charitable status in 1997. The Group aims to support families of children and young people affected by all types of Niemann-Pick Disease. Through the Group we aim to

  • give and receive emotional support
  • provide assistance through a crisis
  • share resources and ideas about such issues as doctors, clinics, benefits and education
  • provide each other with practical suggestions relating to the day to day care of our children
  • establish enduring relationships with others who, on a personal level, understand the anguish the joys and the recovery of being a parent of a child with a life-limiting condition.
    If you would like more information please contact us, we are here to help.

Contact information

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Phone: #44 1592 580672

Fax: #44 1592 580672

Kingslaw House, East Brae, East Wemyss, United Kingdom

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