The Marfan Foundation

Nonprofit or community organization

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About us

The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders.
  • We pursue the most innovative research and make sure that it receives proper funding.
  • We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment.
  • We provide relentless support to families, caregivers, and healthcare providers.

We will not rest until we’ve achieved victory—a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.


Contact information

Date Founded: 1981

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Phone: (800) 8-MARFAN

Fax: (516) 883-8040

22 Manhasset Avenue, Port Washington, NY, 11050, US

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