Ben's Friends Patient Communities

Nonprofit or community organization bensfriends.org

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About us

Mission

To ensure that everyone in the world with a rare disease has a safe place to go and connect with others like them.

Description

BensFriends.org is an international mission-driven organization dedicated to providing safe, supportive online communities for people affected by rare diseases and disorders. Founded by Ben Munoz after a 2006 stroke at age 29, BensFriends.org has a network of patient-to-patient communities helping tens of thousands of people worldwide. For more information, visit BensFriends.org.

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Keywords

Community development , Social enterprise , Multi-service agency , Youth , Civic engagement , Education , Disability , Philanthropy , Human rights and civil liberties , Network of nonprofits , Men , Communications access , Technology , International cooperation , Research and science , Human services , Women , Volunteering , Media , Veterans , Library or resource center , Health and medicine , Rare Disorder Discussion Forums , Arthritis , Discussion Groups , Sjogren's Syndrome , Synovial Sarcoma , Chronic Pain , Guillain-Barre Syndrome (GBS) , Support Group , Cerebellar Hypoplasia , Von Willebrand's Disease (VWD) , Traumatic Brain Injury , Informal Education , Health Chats , Lyme Disease , Nephrotic Syndrome , Multiple Myeloma , Multi Lingual Discussion Groups , Ehlers-Danlos Syndrome , Dystonia , Psoriatic Arthritis (PsA) , Illnesses , Support Groups , Ataxia (U.S.A.) , Member Advocacy , Membership Development , Atrial Septal Defect , Disabilities Children , Glossopharyngeal Neuralgia (GPN) , Lupus , International , Social Media , Arteriovenous Malformation (AVM) , Eagle Syndrome , Eosinophilic Esophagitis , Members , Acute Disseminated Encephalomyelitis (ADEM) , Blogs , Rare Diseases , Adrenoleukodystrophy (ALD) , Patient to Patient Discussion Forum Communities , understanding , United States , Multi Lingual , Metastatic Breast Cancer , Twitter Chats , Postural Orthostatic Tachycardia Syndrome , Medical Education , Rare Disorder , Supportive , Support Children , Membership Support , Support , International Advocacy Networking , Membership Recruitment , Care Taker , Charcot Marie Tooth (CMT) , Erythromelalgia , Primary Sclerosing Cholangitis (PSC) , Membership , Disabilities , Incubator Groups , Support Services , Non Profit Organization , me , Crohn's Disease , Ca , Ataxia (International) , Brain Aneurysms , Rare Movement Disorders , Discussions , Chronic Illness , Unit , Information , Myositis , Medical Research , Supportive Services , Medical Outreach , Narcolepsy , Support For Handicapped People , Hereditary Hemorrhagic Telangiectasia (HHT) , medic , Angioma , International Health , Pituary Brain Tumors , Chronic Fatigue Syndrome , Fibromyalgia , Medical , Chiari Malformation , Podcasts , International Members , Blogspot , United state , Fabry Disease , Amyloidosis , Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) , ADHD/ADD , Trigeminal Neuralgia (TN) , Disabilities Services More

Contact information

Date Founded: 2008

Government ID number: 46-3210142

Email: Log in to view email addresses.

Website(s):
bensfriends.org

Phone: 877-512-0724

Address:
512 West MLK #350, Austin, TX, 78701, US

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