Nonprofit or community organization
Last modified: February 13, 2008, 7:14 AM
Based in the UK but offering support to families worldwide. Unique offers contact with families with an affected member who has the same rare chromosome disorder or who has similar symptoms or practical concerns, irrespective of specific chromosome disorder. It produces a comprehensive range of family-friendly, medically-verified leaflets on various rare chromosome disorders.
Membership is free or by donation.