National Down Syndrome Society

Nonprofit or community organization

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About us

The National Down Syndrome Society works to create a culture that fully accepts and includes the more than 400,000 Americans with Down syndrome. As the national advocate for people with Down syndrome, our goal is to ensure that individuals with Down syndrome are fully participating members of our communities. To this end, NDSS focuses on four areas of programming:

  • The National Policy Center creates systemic change through legislative advocacy
  • The National Buddy Walk® program honors and celebrates individuals in their communities
  • Public Awareness initiatives bring new and positive presentations of Down syndrome to the public
  • Community programs provide comprehensive and accurate information and resources on Down syndrome

The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of live, realize their life aspirations, and become valued members of welcoming communities.


Contact information

Date Founded: 1979

Government ID number: 13-2992567

Email: Log in to view email addresses.


Phone: 800-221-4602

Fax: 212-979-2873

666 Broadway - 8th Floor, New York, NY, 10012, US

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