System messages


Don't miss out! Log in or sign up to:

  • Bookmark listings to review later
  • Save your favorite searches
  • Receive daily emails of listings that interest you
  • Share listings with your network
  • Connect with your favorite organizations
  • Post opportunities for your organization
Log in Sign up

Thinking about grad school?

Idealist Grad Fairs are coming to a city near you!

Actions on this page

Organization logo

The Life Raft Group

Nonprofit or community organization

Last modified: September 25, 2013, 2:52 PM

Description

The mission of the Life Raft Group is to ensure the survival of GIST patients through a comprehensive approach connecting individual patients' needs, the worldwide community of GIST advocates and the global health and research environment.

To do this, we focus on three key areas: research, patient support & education, and advocacy.

In the area of research, we fund and manage uniquely coordinated research initiatives that always keep the needs of the GIST patient foremost. The Life Raft Group is the only GIST advocacy organization with a dedicated research initiative led by a team of world renowned scientists and clinicians in GIST. Our collaborative initiatives are constantly analyzed to ensure their focus remains on finding a cure for GIST.

The LRG also provides support & education to patients & caregivers living with GIST on an individual basis by providing one-on-one counseling sessions, local in-person meetings, and a biennial meeting that gathers the patient, pharmaceutical & medical professional communities together in a supportive and educational setting. We also offer education to the GIST community at large through our videos & webinars, websites, worldwide GIST specialist database, a one-of-a-kind GIST-specific clinical trials database, newsletters & other materials.

In addition, The LRG is a very active presence in effecting change in the GIST community. Our advocacy role ranges from helping patients with treatment access issues on a one-on-one basis, creating regional groups in underserved areas in order to better inform & empower patients, championing patients' needs before government & policy makers and reporting on trends in dosage and survival to the world.

The Life Raft Group's listings

See all (3)
  • Website & Design Coordinator - Job

    Last updated:
    August 8, 2014
    Location:
    Wayne, NJ, US
    Description:
    Description We are a dynamic support organization that directs research to find a cure for a rare cancer and helps those affected through support and advocacy u...
  • GIST Ambassador - Volunteer Opportunity

    Last updated:
    February 28, 2014
    Location:
    Wayne, NJ, US
    Description:
    Title: GIST Ambassador Worksite: Remotely Hours: 2 hours per week suggested Volunteers Needed: 10 Description: A GIST Ambassador is someone who helps to inf...
  • Patient Registry Volunteer - Volunteer Opportunity

    Last updated:
    February 28, 2014
    Location:
    Wayne, NJ, US
    Description:
    Title: Patient Registry Volunteer Worksite: Remotely if volunteer has computer ability to do this at home Hours: 5 – 10 hours per week Length of Commitment...

The Life Raft Group's activity stream

See all (48)

The Life Raft Group's organizations

No connections yet. Click here to connect this organization with your own organization.

The Life Raft Group's people

See all (8)

Contact information

Email:
Log in to view email addresses.
Website:
http://www.liferaftgroup.org
Government ID number:
82-0547746
Phone:
973-837-9092
Address:
155 Rt 46 West (Wayne Plaza II) Suite 202, Wayne, NJ, 07470, US

Administrators

Sign up or log in to administer this page.