The Youth Engagement and Empowerment Coordinator supports youth development and leadership throughout the work of the center.
The Administration for Community Living funded the new National Healthcare Transition Resource Center for Youth with Intellectual and Developmental Disabilities (I/DD). Family Voices, Got Transition and SPAN will collaborate to establish the Center with collaborators from the University of Missouri, Kansas City; and the Waisman Center. This center will empower diverse youth with ID/DD, ages 12-26, to direct their own health care transition from pediatric to adult care.
The Center will recruit, train and support diverse youth/young adults with intellectual and developmental disabilities to serve on the project's Youth Steering Committee, which will guide all project activities. The Center will also be responsible for a Youth Development Initiative, which is aimed at younger participants, to support leadership skill development and confidence-building from an early age. The Youth Steering Committee members will serve as mentors to these younger participants. Members selected for the Youth Development Initiative will receive health care transition training and skill development, starting with 5-7 participants in project year two and continuing with a new group annually, to reach a total of up to 20 youth (ages 12–17) by project’s end. The Youth Development Initiative will consist of a coordinated, progressive series of activities to support youth with ID/DD to develop their health care transition knowledge, self-determination, independence, and quality of life; to offer insight into the needs of younger or less experienced youth for product development; and to feed the Youth Steering Committee with new leaders and robust project feedback throughout the project’s five years.
Objectives are to:
- Create a youth-driven National Healthcare Transition Resource Center and website;
- Identify gaps, disparities, and best practices in health care transition;
- Develop innovative approaches, resources, and training that are accessible and culturally/linguistically competent;
- Accelerate spread of health care transition innovation through State Communities of Practice (CoP) and Project ECHO; and
- Build partnerships with key stakeholders through a National CoP.
- Increased awareness of data on health care transition disparities and intersectionality among clinicians and other stakeholders;
- Families and youth with ID/DD report having access to better, culturally competent, and person-centered health care transition supports via a website, training, new resources and app
- Families report better understanding of their legal rights, medical planning, and how to engage with and ask questions of health care providers to get the support they need; and
- Stronger national networks via increased collaboration. Expected products include: website, landscape analysis report, annual data profile, mobile app, health care transition kits and ECHO training curriculum.
- Review/revise Youth Development Initiative and Youth Steering Committee applications as needed, disseminate each year, recruit, facilitate application review, and onboarding
- Conduct periodic Y-Val assessments on progress at the Center, The Y-Val assessment is a validated tool intended to measure support for the meaningful participation of youth and young adults in advising and decision-making at the agency level. See https://youthmovenational.org/yval/.
- Review/revise curriculums for Youth Steering Committee (YSC) and YDI (Youth Development Initiative) as needed at least annually
- Conduct outreach and recruitment of diverse youth/young adults - especially those with lived experience in foster care and/or juvenile justice and those from underserved communities
- Facilitate monthly meetings with the YSC including individual support for youth to be able to fully participate in the meeting, all communication, logistics, etc.
- Facilitate workgroups for product development and reviews
- Develop social media platforms, connect with organizations, create posts, work with youth to develop tick-tock's/videos/infographics to share
- Participate and support youth in all Community of Practice meetings
- Attend staff meetings and facilitate communication between groups
- Develop Individualized Leadership Plan with each youth to identify strengths, needs for support, and interest in areas for growth and leadership opportunities. The Coordinator provides support, guidance, and coaching to the youth in achieving their goals
- Do the "behind-the-scenes work" of all YSC products and reviews
- Serve as a representative of the group for other entities when members are not available.
- Support partners and collaborators on youth engagement efforts
- Work with staff and evaluators to develop a youth needs assessment to parallel the information needed for the landscape analysis
- Host semi-annual meeting for youth (with center staff in attendance) that reviews the previous year's work, identifies needs, and develops a plan of work
- Establish the development initiative for youth ages 12-16, facilitate monthly,
- Provide train the trainer and mentor training to the YSC members as they become co-trainers Create a toolkit with review of the process and outcomes of the youth steering committee and youth development initiative
- Outstanding planning, communication, and organizational skills
- Competence with written and verbal communication
- Experience with computers and knowledge of Microsoft Word, PowerPoint, and the internet is essential
- Ability to work independently as well as with a team
- Demonstrated commitment to the goals of the project and organization
- Lived experience as a person with an intellectual or developmental disability