Director of Marketing

Job Type

Full Time




55 Kenosia Ave
United States


About NORD

The National Organization for Rare Disorders (NORD) is the leading nonprofit organization helping over 30 million Americans who have rare diseases and those seeking to improve their lives. Since 1983, NORD’s mission is to serve as voice of the rare disease patient community, providing advocacy for fair and enlightened public policies; education for patients, their families, medical professionals and the public; and leadership and representation for rare disease patient organizations. NORD supports medical research to promote the development of safe, effective diagnostics and treatments, and it provides a broad array of patient assistance programs to assure patient access to treatments. Learn more at

Position Summary

The Director of Marketing is responsible for leading the planning and execution of NORD’s marketing strategy. The Director will work collaboratively with other departments to promote NORD’s programs and services and ensure NORD’s position as a thought leader in patient advocacy and the go-to source for information to the patient and medical community. This position is an excellent opportunity for an experienced marketing director to lead a small team that makes a big impact.

Essential Duties and Responsibilities

Develop, implement and evaluate marketing plans across NORD’s multiple audiences that support a unique, engaging and differentiating brand position

Oversee the NORD brand in all communications, including website, social media, electronic and print communications, NORD events and the annual report ensuring brand continuity and messaging consistency

Work collaboratively with Development to promote NORD events, including the Rare Diseases and Orphan Products Breakthrough Summit, Rare Impact Awards and Rare Disease Day

Lead NORD’s website strategy and ongoing maintenance to keep content fresh

Oversee NORD’s social media strategy to ensure it supports the organization’s strategy for driving engagement

Produce content that establishes NORD as a thought leader and extends its reach by driving familiarity of our mission

Leverage analytics and market research to drive insights and drive brand awareness

Evaluate strategies for new marketing and outreach opportunities and leverage existing and new relationships with corporate partners

Serve as a spokesperson for NORD and actively engage, cultivate and manage press relationships to achieve focus on NORD programs, special events and public announcements

Implement crisis communication plans to ensure NORD is prepared to respond to breaking news

Provide leadership and daily management of the marketing team, promoting a culture of high performance and commitment to quality

Performs other duties and functions as assigned


Bachelor’s degree required; concentration in marketing or communications preferred; Master’s degree preferred

At least 7 years of marketing experience, preferably in a non-profit organization

Familiarity with the healthcare sector, nonprofit and/or rare disease community is highly desirable

Knowledge, Skills and Abilities

Excellent writing and editing skills are essential

Outstanding leadership and project management skills in progressively more senior marketing positions in healthcare, medical or scientific affairs or advertising agencies

Ability to articulate and implement a vision and strategy to drive branding efforts; knowledge of media analytics and ability to appropriately interpret market data

Experience developing communications, marketing and public relations strategies and implementation of plans

Demonstrated experience producing compelling web content and social media campaigns to advance brand awareness and engage key constituents

Technical proficiency with Microsoft Office, major social media channels, Google analytics and current Web platforms, including WordPress

Solid understanding of key marketing principles; awareness of current issues and trends in market space of rare diseases and healthcare industry

Displays professional can-do attitude with enthusiasm and upholds the mission and core values of the organization

Professional Level


Minimum Education Required

4-year degree

How To Apply

Please apply through our online application at: