Posted by
Emily's Entourage
Merion Station, PA
Published 14 days ago

Emily’s Entourage (EE) is seeking a part-time (20 hours per week) Director of Strategic Partnerships to manage, cultivate and grow relationships with funders, external stakeholders and strategic partners.  

The Position

The Director of Strategic Partnerships will spearhead partnerships in support of EE’s urgent mission to speed life-saving breakthroughs and a cure for individuals with a rare form of Cystic Fibrosis caused by “nonsense mutations.” This role will vitally contribute to the organization’s growth and drive the achievement of ambitious revenue goals. The ideal candidate will be a skilled relationship developer and partnership manager; a driven, goal-oriented fundraiser; and a strategic thinker. 

EE has built a robust corporate partnership and foundation grant program that currently generates approximately 25% of the organization’s annual revenue. The funds raised through this program drive EE’s aggressive investment in research to speed therapeutic development for nonsense mutations of CF. EE’s current portfolio of corporate and foundation supporters includes more than 30 life sciences, medical device, and industry partners who support EE through annual sponsorship, sponsorship of special events or digital awareness campaigns, or foundation operating grants. As the organization’s work continues to advance, there is immense opportunity to strengthen and form new strategic partnerships and develop innovative revenue streams to drive EE’s critical mission. 

The Director of Strategic Partnerships will join a core team of seven, including a full-time Director of Operations and Marketing and Program Manager, a part-time Fundraising and Special Events Manager, a part-time Patient Registry Coordinator, a part-time Database Manager, and two co-founders. Additionally, EE is in the process of hiring a Chief Scientific Officer. The Director of Strategic Partnerships will report to the co-founders. 

 The organization is based in Bala Cynwyd, PA but is currently virtual due to COVID-19. This position is open to local and remote applicants. 


The Organization

EE is an innovative 501(c)3 that funds research for new treatments and a cure for nonsense mutations of Cystic Fibrosis (CF), a fatal genetic disease afflicting Emily and many others. Since 2011, Emily’s Entourage has awarded millions of dollars in research grants, launched a CF gene therapy company that has been acquired by a large pharmaceutical company, and led worldwide efforts to drive high-impact research and drug development. 

The foundation’s work is particularly critical now as revolutionary breakthroughs are available for 90% of the CF population, but those with nonsense mutations fall in the outlying 10% that do not benefit from these major advances. EE is laser-focused on changing that—and doing it fast, so nobody is left behind.

Importantly, the work of EE holds the potential to benefit not only those with nonsense mutations of CF. Roughly 12% of all genetic diseases are caused by nonsense mutations, which means 30 million people worldwide live with a disease caused by a nonsense mutation. The research that EE is spearheading has the potential to have wide-reaching effects, far beyond the CF community. 

EE has been featured in the New York Times, STAT, CNN, TheSkimm, People, and more. Emily was named a “Champion of Change” for President Obama’s Precision Medicine Initiative and is the recipient of the 2016 Global Genes Rare Champion of Hope for Advocacy Award and the 2020 Philadelphia Magazine Luminary Award.


Corporate Partnership

  • Manage EE’s robust corporate partnership program and explore new ways to leverage corporate relationships to expand funding and strategic opportunities for EE
  • Develop, in coordination with co-founders, and meet or exceed annual and event-specific revenue goals and targets
  • Build and sustain strong relationships with existing partners, in addition to researching and developing new relationships to expand EE’s pipeline of corporate targets and partners
  • Develop, manage and execute cohesive strategic engagement plans for corporate partners and serve as the main point of contact
  • Create personalized and compelling sponsorship and partnership proposals and materials on an annual basis, and related to specific events and campaigns 
  • Solicit sponsorships, track and follow up as needed
  • Steward corporate donors and ensure sponsorship benefits are fulfilled compliantly 

Foundation Relations/Grants 

  • Maintain, build, and grow relationships with foundations and grant-giving partners
  • Prospect and research to learn about potential donors and create more opportunities for support
  • Oversee all grant-writing efforts including, planning and maintaining an annual grants schedule, drafting proposals and compiling additional budget, scientific, and organizational components with collaboration from EE staff and stakeholders as needed
  • Ensure reporting and compliance of awarded grants in a timely manner

Special Events

  • Strategize and coordinate, in collaboration with the Fundraising and Special Events Manager and co-founders, on the fundraising, sponsorship, and any other event-specific revenue generation for major fundraising events
  • Work with Fundraising and Special Events Manager to ensure all sponsorship benefits are fulfilled, including planning sponsor cocktail hours or virtual receptions, communicating seamlessly to sponsors about benefits and deliverables, and acting as a sponsor ambassador and steward at events 
  • Work with Marketing and Program Manager to execute sponsor recognition and social media benefits and to collect, analyze and report on metrics and sponsorship reach post-event

Business Development

  • Work with EE staff and co-founders on proposals, relationship management, and business development activities related to new and emerging revenue streams, including EE's patient registry


  • Collaborate with co-founders and Director of Operations on setting and regularly tracking annual strategic priorities as they pertain to partnerships and grants
  • Support Director of Operations and Database Manager in ensuring donor database integrity and reporting/analysis as needed
  • Other duties as assigned


  • Bachelor’s degree in a relevant field
  • Four to seven years professional fundraising experience including corporate partnership, sponsorship, foundation relations or related field
  • Previous experience in health organizations is preferred but not required
  • Exceptional oral, written, and interpersonal skills. Must be able to write and speak compellingly about our organization, mission, and goals, and to effectively tailor messaging to different stakeholders
  • Demonstrated success in relationship management 
  • Ability to consistently and positively communicate and collaborate with colleagues, organization leadership, and external partners
  • Ability to manage multiple, competing priorities and to successfully deliver on time and on budget in a fast-paced, dynamic environment 
  • Ability to develop an understanding of basic science and research related to CF and nonsense mutations in order to comfortably and appropriately represent EE in external stakeholder meetings, speaking engagements, or opportunities to share information about EE with the community.

Ideal Candidates

  • Impeccable attention to detail 
  • Efficient, well-developed organizational and time management skills 
  • Self-starter and goal-oriented with the ability to prioritize projects and meet deadlines
  • Ability to take initiative to problem solve when faced with challenges
  • Thoughtful with excellent follow-through 
  • Hardworking with an attitude of “leading with ‘yes’” and "whatever is necessary" to complete the job 
  • Team-oriented player able to work alongside organization leadership and staff, as well as board members, key advisors, and volunteers 
  • Ability to work select nights and weekends as needed for events with possibility for limited travel related to special events in the Philadelphia and/or New York areas

Emily’s Entourage (EE) is seeking a part-time (20 hours per week) Director of Strategic Partnerships to manage, cultivate and grow relationships with funders, external stakeholders and strategic partners.  

The Position

The Director of…

Details at a Glance

  • Time Commitment
    Part Time Schedule
  • Education
    4-Year Degree Required


EE offers a competitive salary based on experience. This position is not eligible for benefits.


Work may be performed anywhere in United States
Associated Location
PO Box 71, Merion Station, PA 19066, United States

Apply to This Job


Interested candidates should submit a one-page cover letter and resume. The cover letter should describe (a) previous relevant experience and (b) why the position is right at this stage in his/her career.  

Emily’s Entourage provides equal employment opportunity to all persons regardless of age, race, color, religion, national origin, gender, sexual orientation, marital status or disability. 

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