Emily’s Entourage (EE) is looking for an experienced Grant Writer to write compelling grant and award applications for growing medical research nonprofit. The Grant Writer will be responsible for preparing high quality grant applications, proposals, reports, presentations, and other communications for submission to funders in a timely manner. This position is on an as-needed, contract basis.
EE is an innovative 501(c)3 that funds research for new treatments and a cure for nonsense mutations of Cystic Fibrosis (CF), a fatal genetic disease afflicting Emily and many others. Since 2011, Emily’s Entourage has awarded millions of dollars in research grants, launched a CF gene therapy company that has been acquired by a large pharmaceutical company, and led worldwide efforts to drive high-impact research and drug development.
The foundation’s work is particularly critical now as revolutionary breakthroughs are available for 90% of the CF population, but those with nonsense mutations fall in the outlying 10% that do not benefit from these major advances. EE is laser-focused on changing that—and doing it fast, so nobody is left behind.
Importantly, the work of EE holds the potential to benefit not only those with nonsense mutations of CF. Roughly 12% of all genetic diseases are caused by nonsense mutations, which means 30 million people worldwide live with a disease caused by a nonsense mutation. The research that EE is spearheading has the potential to have wide-reaching effects, far beyond the CF community.
EE has been featured in the New York Times, STAT, CNN, TheSkimm, People, and more. Emily was named a “Champion of Change” for President Obama’s Precision Medicine Initiative and is the recipient of the 2016 Global Genes Rare Champion of Hope for Advocacy Award and the 2020 Philadelphia Magazine Luminary Award.
Pay and Benefits
EE offers a competitive pay based on experience.
Interested candidates should submit a one-page cover letter, resume and a writing sample from a previous grant to firstname.lastname@example.org.
Emily’s Entourage provides equal employment opportunities to all persons regardless of age, race, color, religion, national origin, gender, sexual orientation, marital status or disability.
Emily’s Entourage (EE) is looking for an experienced Grant Writer to write compelling grant and award applications for growing medical research nonprofit. The Grant Writer will be responsible for preparing high quality grant…