Emily’s Entourage (EE) is seeking a full-time special events professional to lead the planning, development, production and evaluation of major fundraising events, online and in-person, to drive the organization’s growth and ensure that goals are met within required timeframes and established budgets.
Candidates must demonstrate the ability to adapt to the rapidly changing fundraising landscape since COVID-19. The organization’s signature galas, which make up more than half the organization's operating budget, transitioned to virtual and may remain virtual, or hybrid, indefinitely. Ideal candidates have proven experience in both traditional event planning and producing virtual events.
In this role, the individual will bring their events expertise, attention to detail, and highly motivated drive to produce impactful, revenue-generating events for the organization that drive growth. Ideal candidates will be creative, have a high sense of urgency, and operate in a proactive and results oriented manner. Candidates must have strong organizational and project management skills, excellent verbal and written communication skills, and a “can do” attitude.
The Special Events Manager will join a core team of five, including a full-time Director of Operations and Director of Marketing and Communications, a part-time Director of Strategic Partnerships, and two co-founders. Additionally, EE plans to hire a Chief Scientific Officer in Fall 2021. The Fundraising and Special Events Manager will report to the Director of Operations. The organization is based in Bala Cynwyd, PA but is currently virtual due to COVID-19. Local candidates only.
EE is an innovative 501(c)3 that funds research for new treatments and a cure for nonsense mutations of Cystic Fibrosis (CF), a fatal genetic disease afflicting Emily and many others. Since 2011, Emily’s Entourage has awarded millions of dollars in research grants, launched a CF gene therapy company that has been acquired by a large pharmaceutical company, and led worldwide efforts to drive high-impact research and drug development.
The foundation’s work is particularly critical now as revolutionary breakthroughs are available for 90% of the CF population, but those with nonsense mutations fall in the outlying 10% that do not benefit from these major advances. EE is laser-focused on changing that—and doing it fast, so nobody is left behind.
Importantly, the work of EE holds the potential to benefit not only those with nonsense mutations of CF. Roughly 12% of all genetic diseases are caused by nonsense mutations, which means 30 million people worldwide live with a disease caused by a nonsense mutation. The research that EE is spearheading has the potential to have wide-reaching effects, far beyond the CF community.
EE has been featured in the New York Times, STAT, CNN, TheSkimm, People, and more. Emily was named a “Champion of Change” for President Obama’s Precision Medicine Initiative and is the recipient of the 2016 Global Genes Rare Champion of Hope for Advocacy Award and the 2020 Philadelphia Magazine Luminary Award.
Events and Project Management
Plan and execute 2-3 major events, (500+ attendees) and 3-5 smaller networking/major donor events throughout the year, and scientific and advocacy meetings as needed, either in-person or virtual
Sponsors and Major Donors
Emily’s Entourage (EE) is seeking a full-time special events professional to lead the planning, development, production and evaluation of major fundraising events, online and in-person, to drive the organization’s growth and ensure that…
Interested candidates should submit a one-page (1) cover letter and resume to firstname.lastname@example.org. The cover letter should describe (a) previous relevant experience and (b) why the position is right at this stage in his/her career.
Emily’s Entourage provides equal employment opportunities to all persons regardless of age, race, color, religion, national origin, gender, sexual orientation, marital status or disability.