Chief Operating Officer

Job Type

Full Time



Start Date



North Carolina
United States



The Chief Operating Officer (COO), a new position for the Chapter, will play a critical role in the leadership of this impactful mission and data driven non-profit organization. The COO will support the pursuit of the Chapter’s strategic priorities while providing cohesion and fostering collaboration amongst multiple departments and complex initiatives and demonstrate a passion for breaking new ground toward mission objectives in the areas of: Care Services, Research, Community Outreach, Marketing and Communications, Finance and Administration, and Human Resources.

The successful candidate will be a skilled professional with a track record of transformational leadership and results who will partner with the CEO on all major programs and initiatives. The COO is responsible for aligning the Chapter’s internal processes and programs to ensure that staff pursue the Chapter’s strategic direction and growth with high quality, productivity and optimism in meeting future goals.

The COO will monitor and assess ongoing strategies, conduct midcourse corrections and generally align the efforts of the senior leadership team in support of the Chapter’s operations, including how its finances, technology and staffing relate to program and fundraising goals.

The COO will oversee hiring, and will manage the preparation of budgets and forecasts and will play a formative role in building the culture of the Chapter around community service, accountability and results. The COO provides oversight for training, mentoring and capacity building and will be an internal advocate for quality, productivity and professional development.

The COO will provide the leadership, management and vision necessary to ensure that the Chapter has the proper operational controls, administrative and reporting procedures, and people systems in place to effectively grow the organization and to ensure financial and operating strength.


The ALS Association North Carolina Chapter is dedicated to the fight against ALS in many ways, including funding global research efforts, supporting scientific and clinical collaboration, connecting people with ALS to clinical trials, partnering with multidisciplinary ALS clinics and centers, educating the public about ALS, providing professional support services to families facing ALS, pursuing important public policy initiatives, and bringing the ALS community together.

The North Carolina Chapter’s compassionate Care Services team provides expert advice and assistance for people living with ALS, free of charge. Our knowledgeable and dedicated staff help individuals and families access the best information, resources, equipment, and experts to maintain and maximize health, independence, communication, mobility, safety, and quality of life. Support groups throughout our service area provide practical solutions for everyday challenges and a connection with others living with ALS. Medical professionals associated with 5 multidisciplinary ALS specialty clinics supported by the Chapter facilitate clinical trials and ALS studies. This proven model of robust, proactive, multidisciplinary care helps people live longer and better with ALS while also advancing the search for treatments and a cure.

Our advocacy efforts in North Carolina and across the nation inform and educate elected officials and the public about opportunities to facilitate access to services, accelerate drug development, and reduce barriers to care and research.

The Chapter’s Special Events team provides people living with ALS and their families with the opportunity to gather, share, and enjoy themselves. Our family-friendly events – like our Walks to Defeat ALS, Runs to Defeat ALS and numerous community partner events – empower and educate the ALS community. The Chapter’s ALS Ambassador Program provides the opportunity for volunteer champions of our cause to receive specialized training and materials to represent the Chapter and extend our reach throughout North Carolina.

Position Duties & Responsibilities

  • Serves as second-in-command to the CEO and is the internal leader of the organization, ensuring that all day-to-day operations are smooth, efficient and highly-productive;
  • Coordinates the annual operating plans and budget processes;
  • Supervises four direct reports, as follows: Director of Care Services & Advocacy, Director of Special Events, Director of Finance & Operations, Communications & Marketing Manager;
  • Collaborates with the Director of Philanthropy, who reports directly to the CEO;
  • Facilitates intra-departmental collaboration to ensure that all departments are communicating effectively and supporting one another as needed;
  • Monitors resource and personnel allocation to ensure departments are appropriately resourced;
  • Oversees all Chapter operating activities to achieve outcomes that are consistent with the Chapter’s strategic plan;
  • Participates in HR decisions regarding senior staff; conducts or participates in annual reviews and quarterly check-ins as necessary;
  • Participates in key hires and terminations. Designs and reviews performance improvement reports to determine effectiveness of interventions;
  • Troubleshoots and strategizes to address departmental and organizational challenges;
  • Presents to the board at quarterly meetings and serves on board committees as appropriate;
  • Establishes productive working relationships between and among the senior management team, CEO, the staff, the Board and other stakeholders to ensure that the Chapter operates profitably and productively;
  • Work with the staff to identify and implement cost-effective ways to deliver state-of-the-art programs to clients;
  • Participates in identifying and cultivating corporate, individual and foundation sponsors;
  • Ensures excellent relationships with local media, provides oversight of all marketing and communications functions and ensures that the Chapter's presence on-line is timely and robust;
  • Serves as a public representative of Chapter, in the absence of the CEO, keeping the Chapter current and an active participant in regional and community events;
  • Responsible for the management of all performance effectiveness processes, internal and external, that measures and evaluates progress against strategic goals;
  • Provides timely, accurate and complete reports on the operating condition of the Chapter;
  • Spearheads the development, communication and implementation of effective growth strategies and processes;
  • Ensures that the accounting function provides the organization with quick access to financial information and enables strategic budgeting;
  • Supports activity related to budgeting, reporting, measurement and revenue generation - including proposal preparation and grant writing activities;
  • Ensures strategic objectives shaped at the executive management and Board level are translated into tactical business plans, with mechanisms for key measurements in place to monitor progress;
  • Ensures that infrastructure (facilities, systems, technology and staff) supports the Chapter’s strategic and operational objectives;
  • Monitors adherence to policy and set high standards of professionalism across all Chapter functions;
  • Contributes to the creation and stewardship of organizational culture and ethos, both internally and externally.

Candidate Qualifications

  • Strong grasp of the urgent mission of the organization, and able to translate empathy for the daily challenges of those living with ALS into actionable objectives that drive positive outcomes and provide revenue growth to fuel our unrelenting search for effective treatments and a cure;
  • Possesses a passion for the Chapter’s mission and is committed to helping staff members and constituents participate in the success of the organization;
  • Ability to thrive in a fast-paced environment and exemplify leadership and composure under pressure, while maintaining high morale;
  • Ability to assimilate a high volume of information across disciplines and departments, providing leadership and support to senior staff and experts in each of those disciplines;
  • Has a demonstrated ability to both lead and build the capabilities of a driven, bright and diverse range of people, representing various backgrounds, levels of training, and career stages, without the need to micromanage them;
  • A team builder who has experience in scaling up organizations; ability to connect with staff both on an individual level and in large groups; capacity to enforce accountability, develop and empower top-notch leaders, cultivating entrepreneurship, and learning the strengths and weaknesses of the team so as to put people in a position to succeed;
  • Demonstrates excellent communication and presentation skills, a sense of humor, integrity, and impeccable work ethic;
  • Ability to creatively problem solve, and make and implement decisions quickly and soundly;
  • Is a strong problem solver, project manager, and shows creative resourcefulness;
  • Able to manage multiple projects and initiatives, and has demonstrated success in process improvement, change leadership and change management;
  • Has a track record of exceeding goals with a bottom-line orientation;
  • Has the ability to consistently make good decisions through a combination of analysis, wisdom, experience, and judgment;
  • Has a high level of business acumen including successful P&L management; the ability to balance the delivery of programs against the realities of a budget;
  • Has vision and ability to think strategically, anticipate future consequences and trends, and incorporate them into the organizational plan;
  • Enjoys working hard and looks for challenges; able to act and react as necessary, even if limited information is available; not afraid to take charge of a situation; can overcome resistance to leadership and take unpopular stands when necessary;
  • Has a thorough understanding and experience with the full range of business functions and systems, including strategic and operational planning, budgeting, social service business analysis, finance, information systems, human resources, and marketing;
  • Able to build strong relationships with key internal and external stakeholders.

Education and Experience Requirements

  •  A minimum of 7+ years of nonprofit management experience;
  • Four year degree from accredited college/university is required, post graduate degree a plus;
  • Possesses requisite experience in HR frameworks, financial management, marketing, program development, fundraising and operations;
  • Advanced Microsoft Office proficiency especially with Excel, Word and PowerPoint.


The ALS Association North Carolina Chapter offers competitive salary and benefits including but not limited to:

  • Medical, dental, and vision plans
  • Paid vacation, sick, and holidays
  • 401(k) matching
  • Skills training

Level of Language Proficiency


Professional Level


Minimum Education Required

4-year degree

How To Apply

To apply, send resume, cover letter and salary requirements to