36 Cordage Park Circle
In 2001, when Christine McSherry’s son, Jett, was diagnosed with Duchenne muscular dystrophy, she set out to save his life and created Jett Foundation. Over the past 17 years, the goals of the foundation evolved with the landscape and status of Duchenne. From funding biomedical research that has led to some of the greatest breakthroughs in genetic medicine; to serving families, children, and young people through educational and direct service programs; to advocating for the approval of drugs to treat Duchenne that are safe, effective, and have the potential to save lives; Jett Foundation’s ability to pivot to meet the urgent needs of the Duchenne patient community makes Jett Foundation a leading patient advocacy organization in the country while allowing us to maintain our grassroots, patient and family-focused roots.
The Program Associate is a crucial member of the programming team. The Associate will work as a meaningful thought-partner to colleagues, collaborate closely with senior staff, and help develop, manage, and drive projects, strategies, and opportunities. The Program Associate is responsible for supporting all aspects of Jett Foundation’s programs, family and patient engagement and education, and advocacy, as Jett Foundation works to defeat Duchenne muscular dystrophy and support the families affected by this disease on all fronts. The Program Associate supports the direct service programs that Jett Foundation provides, such as summer camps for children and young people with neuromuscular disorders, financial assistance programs for families burdened by the heavy cost of raising a child with a progressive disease like Duchenne, and our college and career coaching program that helps young people with neuromuscular disorders achieve their career and education goals. The Program Associate also provides administrative support for the planning, coordination, and delivery of educational programs and resources that are focused on engaging and educating families, clinicians, and other Duchenne. Other responsibilities include working closely with families and outside stakeholders to spread Jett Foundation’s mission and serving as administrative support for the program team which may include answering the phones and ordering program supplies.
This is an exciting time to join a fast-growing organization and an emerging leader in the rare disease space. We expect that this position will grow and evolve within the organization.
The Program Associate reports to the Director Programs and Advocacy. The nature of this role includes participating in Jett Foundation programming efforts that occur on occasional evenings or weekends. This job is a full-time position based in our Plymouth, MA office. Must be able to travel 1-3 times per month to provide program support at community events.
The activities and tasks the Program Associate is responsible for include, but are not limited to, the following:
- Engaging with families who are part of Jett Giving Fund, our financial assistance program, and ensuring that JGF families are having touchpoints with Jett Foundation at least once a week; managing the JGF email and answering questions on the program; following internal processes and procedures for onloading a family into the program; working with equipment vendors and dealers
- Coordinating logistics for planned programmatic and awareness events, this may include booking hotels, conference rooms, and childcare, ordering catering, ensuring accessibility of venue, coordinating parking for families, coordinating attendee lists, printing name tags, registration tracking, post-event impact report, and other duties as required to ensure successful event; may also include being involved in agenda planning, committee management, and speaker outreach
- Triaging, managing, and tracking incoming calls and requests from patients, families, clinicians, and other stakeholders; analyze incoming patient and family data and identify engagement opportunities; generate quarterly program reports on programmatic activity, organize, develop, and maintain patient community database; ensure accuracy, consistency, completeness, and quality so that the database meets the needs of individual programs
- Support Camp staff throughout the year by helping assess the needs of campers, help coordinate camp equipment, packing, and programming logistics, provide support during the application process
- Manage conference attendance and subsequent documentation for Jett Foundation’s Community Ambassadors
- Work in partnership with the business development team to prepare for joint fundraiser/programmatic events where patients and families will be present
- Assist in building-out the Jetting for Success program, researching universities and colleges, creating template cover letters, resumes, and college preparation check-lists, identifying and engaging with potential students, volunteers, and corporate partners
- Assist in the research and development of educational resources directed at the patient community and other stakeholders
- Help the marketing and communications gather patient stories for social media, website development, press releases, annual report, funding reports, program books, direct mail, and blogs
- Responsible for collecting incident reports from all programmatic activities (workshops, awareness days, camp, ambassador events, DBC meetings, Patriots Day)
- Assist in the development of internal and external annual impact reports
The Program Associate will have excellent interpersonal, organizational, and time management skills, with the flexibility to balance people and task assignments/focus, as required. In addition, the Program Associate will demonstrate compassion and empathy towards individuals and families who are experiencing sadness and stress in relation to their or their child’s diagnosis, a sense of humor, high energy level, and enthusiasm for teamwork and for meeting and working with a wide range of individuals.
- You are committed to the Jett Foundation’s mission and want to come to work each morning to help extend and improve the lives of children and young people.
- You have excellent written and verbal communications skills. You are comfortable writing emails in a professional setting and articulating your point of view, your progress, and the goals of Jett Foundation and Jett Foundation’s programs to external and internal audiences.
- You are receptive to feedback and eager to learn and grow professionally. You enjoy giving and receiving feedback and exhibit a high level of professionalism.
- You are a self-motivated self-starter who is capable of working on projects independently and going the extra mile. You are a fast learner and are capable of looking beyond the one project you are working on and understanding how it will have a broader impact.
- You thrive in a fast-paced and collaborative environment and you are focused on finding solutions. You are a team player and are respectful of your colleagues time when working on a project together.
- You are patient, both with yourself and with others, and are extremely detail-oriented and concerned with quality and completeness.
- You have general administrative skills including computing, organizing, planning, scheduling, and you are proficient in Microsoft Office Suite (Word, Excel, PowerPoint)
- You working knowledge of the Internet for research and understand how social media can be used as a tool to connect with members of our community all over the world.
- You are proficient in outgoing/incoming call handling and are polite and professional when engaging with people who call the office.
- You are discreet and conscious of patient confidentiality; you are empathetic, non-judgmental, and a good listener.
EDUCATION & EXPERIENCE
· Bachelor's degree required
· Minimum of 2 years of experience working in an office setting, non-profit setting a plus
· Some level of experience working with youth or families is preferred
JETT FOUNDATION’S EEO POLICY
It is the policy of Jett Foundation to provide equal employment opportunity (EEO) to all persons regardless of age, color, national origin, citizenship status, physical or mental disability, race, religion, creed, gender, sex, sexual orientation, gender identity and/or expression, genetic information, marital status, status with regard to public assistance, veteran status, or any other characteristic protected by federal, state or local law. In addition, Jett Foundation will provide reasonable accommodations for qualified individuals with disabilities.
Jett Foundation’s goal is to increase representation of women, people of color, veterans and individuals with disabilities. Our programs are designed to comply with all applicable federal, state and local laws, directives and regulations and cover all human resource actions including employment, compensation, benefits, training, education, transfers, promotions and social/recreational programs.
Jett Foundation’s Executive Director, Board of Directors, and senior leadership team regularly receive and review affirmative action reports and have the responsibility to monitor progress, reinforce policies and hold the organization accountable to meet objectives.
This is a full-time position, which provides competitive pay commensurate with experience; supportive and engaging work environment with opportunities for professional development. Additional benefits include generous time off and health insurance options.
Level of Language Proficiency
Proficiency in english
Minimum Education Required
How To Apply
To apply, please send a thoughtful cover letter, resume, and three (3) references to Jordan McSherry, Director of Programs and Advocacy, email@example.com. Please include the job title in the subject of your email. No phone calls please.