55 Kenosia Ave
The National Organization for Rare Disorders (NORD) is the leading nonprofit organization representing the 30 million Americans who have rare diseases and those seeking to improve their lives. Since 1983, NORD has served as the voice of the rare disease patient community, providing advocacy for fair and enlightened public policies; education for patients, their families, medical professionals and the public; and leadership and representation for rare disease patient organizations. NORD supports medical research to promote the development of safe, effective diagnostics and treatments, and it provides a broad array of patient assistance programs to assure patient access to treatments. Learn more at www.rarediseases.org.
The program manager will be primarily responsible for overseeing NORD’s new rare disease centers of excellence initiative. The goal of this program is to provide a network of comprehensive medical homes for patients seeking diagnosis, treatment and care for their rare disease. The centers will serve as a model for standards of clinical excellence, education and innovation in rare diseases.
The program manager will help to identify issues, provide solutions, delegate tasks and monitor progress to keep the organization on schedule and budget for the centers of excellence initiative, and other projects as assigned. This position will require frequent communication with other staff, departments and external partners.
ESSENTIAL DUTIES AND RESPONSIBILITIES
Develop and execute plans to raise awareness of and grow the network of centers of excellence
Research grants and new opportunities that support business plans
Stay current on industry standards and trends
Create and execute project plans with clear goals and KPIs
Manage day-to-day operational tasks related to scope of work
Minimize NORD’s exposure and risk, ensuring management is aware of potential risks and propose solutions
Ensure proper documentation is complete, current and stored appropriately
Plan and facilitate internal and external status meetings
Maintain and oversee deliverables and budgets
Work closely with accounting to ensure billing and invoicing is timely and accurate
Support development staff in developing marketing collateral and in sales calls or meetings
Support the development or enhancement of policies and procedures
This role will interface directly with key external stakeholders and effectively:
Develop and manage close business relationships
Conduct on-site or off-site business review meetings
Review and respond to program related communications in a timely and professional manner
Identify and respond to requests and issues promptly, ensuring confidence in NORD’s delivery of programs and services
5 years of experience in program management from design and planning through successful implementation, including process documentation and post-assessment
Knowledge of healthcare industry, healthcare delivery systems and cooperative medicine preferred
Specialized understanding or working knowledge of rare diseases and undiagnosed genetic conditions, genetic testing, clinical trials, and longitudinal studies preferred but not required
Education and Training:
Project Management Certification or CAPM preferred
Healthcare or patient advocacy experience preferred
Bachelor’s degree required. An advanced degree (Master’s level) in a relevant field (e.g., business, healthcare administration, public health, etc.) is strongly preferred
Knowledge, Skills and Abilities
A passion for NORDs mission
Strong process and analytical skills with proven ability to interact at all levels of the organization and with a variety of stakeholder groups
Exceptional organizational skills
Results-oriented work ethic
Ability to handle confidential and proprietary information
Ability to manage multiple projects and tasks to demanding, time-sensitive deadlines
Strong written, verbal, and interpersonal communication skills
Strong budgeting and forecasting skills
Excellent account and/or client management skills
Excellent MS Office skills
Able to analyze, evaluate and move quickly to support rapid decision making
Effective team management and conflict management
High level of professional integrity
Able to thrive in the creative, fast-paced, and highly professional corporate culture of NORD that emphasizes excellence, collegiality and teamwork in pursuit of its nonprofit mission.
Essential functions are typically performed in an office setting with low noise levels. Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions.
Occasional travel, including business meetings and conferences, as required.
ABOUT THE STRATEGY & PROJECT DEVELOPMENT DEPARTMENT
Strategy is a program department within NORD whose goal is to inform critical institutional and program decision making, strengthen the design and implementation of NORD’s work, and generate knowledge that advances NORD’s program objectives. We pursue this goal by (1) enhancing the organization’s efforts to generate ideas for new initiatives and larger bodies of work; (2) applying a wide range of planning approaches that help turn ideas into effective action; (3) using evaluation to improve program performance and inform decision making, (4) ensuring that staff have access to information that meets their needs to design, implement, and manage high performing strategies, initiatives, and campaigns, and (5) collaborating with colleagues in preparing a wide range of planning and other types of documents for consideration by NORD’s board of directors.
Planning and Project Development:
Planning and project development is part of the Strategy department within NORD’s program division. The unit’s primary aims are to strengthen the organization’s efforts to generate ideas for new initiatives and larger bodies of work; apply a wide range of planning approaches that enhance the organization’s capacity to undertake projects that achieve programmatic and institutional goals; oversee the launch of initiatives resulting from the approval of new strategies; engage with programs and projects to review and revise existing strategies and initiatives; and provide guidance and feedback to the Chief Strategy Officer about the suitability of a range of planning proposals, including idea agendas, strategy papers, and write ups.
Minimum Education Required
How To Apply
Please apply online at https://workforcenow.adp.com/mdf/recruitment/recruitment.html?cid=ecbca44e-a994-4aa0-adc4-21c7b3d97fb5&sid=bm9yZDE5ODM%3D&jobId=179122&lang=en_US&source=CC3