The Patient Services Director serves as the Foundation’s medical liaison with the mesothelioma community, providing direct services to patients, their families, and caregivers about their diagnosis, treatment options including clinical trials, and managing side effects. The Patient Services Director reports to the Executive Director and serves in an advisory capacity to the Board of Directors.
The Patient Services Director has primary responsibility for:
- Working with patients, family members, and caregivers as they navigate their mesothelioma journey including reviewing individual cases, maintaining regular contact with patients, providing scientifically accurate, evidence-based information including referrals to available mesothelioma experts, treatment options, clinical trial details, and managing side effects using a shared decision-making model of care.
- Developing, editing, reviewing, and maintaining patient education resources including print/digital materials, website content, social media educational series, webinars/MesoTV content, and other resources. Manage the Patient Travel Grant program efficiently and accurately.
- Serving as staff liaison to the Scientific Advisory Board including providing administrative support, facilitating the research grants review process, recruiting outside experts for consultation and developing new projects that meet the needs of the Foundation and the patient community.
- Maintaining continued competency in mesothelioma by reviewing the latest treatments and clinical trials, preparing summaries/briefings for distribution to the patient community, working collaboratively with a member of the Foundation board as a rotating medical advisor to ensure that all information is accurate, and contributing to abstracts, research articles and other educational content as time and resources permit.
- Developing and maintaining a comprehensive list of all available mesothelioma experts and relevant clinical trials for distribution via the website, with full documentation in Salsa CRM. Build relationships with mesothelioma experts and communicate regularly and professionally regarding Foundation resources and partnership opportunities.
- Supporting and staffing all Foundation educational events including the Symposium/Patient Conference, MesoTV, webinars, support groups and other patient-focused programming.
Qualifications (Experience and Education)
- BSN with 5+ years' experience working in thoracic medical oncology or MSW with 5+ years’ experience working in oncology
- 5+ years delivering direct patient care
- MSN with 7+ years’ experience in mesothelioma patient care
- ONS certification
- Clinical trials experience
- Strong interest and skills in working with a small team of dedicated nonprofit professionals with compassion and integrity.
- Experience in navigating difficult topics with clarity and accuracy.
- Able to develop relationships with patients, healthcare providers, and other partners to advance the goals of the Foundation.
- Patient-focused, detail-oriented approach to delivering programs and services.
- Proficient with and/or able to quickly learn to use general office programs/software (I.e. MS Office, Zoom, SalsaCRM).
- Salary Range: $75,000 - $90,000 depending on qualifications/experience
- Job Type: Full-Time
- Job Location: Remote (with occasional travel to the office and/or conference locations when travel restrictions are lifted)
- The Foundation currently maintains a Washington D.C. office however this position can be based anywhere in the United States
- Benefits: Medical, dental, vision, retirement
COVID-19 Vaccination Requirement
We will require proof of COVID-19 vaccination (including booster shots as advised by qualified healthcare providers) for all employees at the Mesothelioma Applied Research Foundation. We also require that employees follow the Washington D.C. masking and social distancing requirements, even if their place of work is not located in the region. We are committed to keeping our patients, their families, and caregivers safe from this virus and any future variants and mutations.