The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders.
- We pursue the most innovative research and make sure that it receives proper funding.
- We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment.
- We provide relentless support to families, caregivers, and healthcare providers.
We will not rest until we’ve achieved victory—a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.