First launched in 2015, the Myalgic Encephalomyelitis Action Network (#MEAction) is a non-profit organization dedicated to changing this situation. We connect an international network of patients who are empowering each other to fight for health equality for Myalgic Encephalomyelitis (ME). #MEAction is not structured like a traditional advocacy organization. We are a digital platform designed to empower patients, advocates and organizations, wherever they might be, with the technological tools and training to do what they are already doing – better. We were founded with the belief that while we may find it difficult to advocate for ourselves in the physical world, in the virtual world, we can be an unstoppable force.
Myalgic Encephalomyelitis (ME) is a disease that has been ignored by medicine for decades. Like a growing epidemic of autoimmune disease, ME has not received adequate attention. Persons with this disease face an added stigma when our neighbors, our doctors, and even our loved ones cannot perceive our disabilities from the outside.