Volunteer Opportunity

Patient Advocate Associate (PAA)

Posted by
Rare Genomics Institute | Washington, DC
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Rare Genomics Institute


New
|
Published 2 months ago

Start Date

March 25, 2019

Time Commitment

A few hours per week

Duration

Long-Term (6 months-1 year)


The Patient Advocate Associate (PAA) works as part of the Patient Advocacy Team (PAT) in

Rare Genomics Institute (RG). A PAA RG is intimately involved with patients, walking

incoming families through the process of obtaining genetic sequencing and research through

RG and affiliates. Our PAAs are specially trained to provide individualized access and

coordination of CLIA-certified Genetic Sequencing and research services and HIPAA-

compliant patient data sharing consent. These families have been through so much already, and

now you have the ability to directly help families and their children. While helping these rare

disease families through RG is an extremely rewarding experience, the ability to promptly carry

out responsibilities of the job is essential to ensure proper healthcare delivery. The work is

completely virtual (via email), so you can easily adjust your work to your schedule. Expect at

least about 5 hours a week.

Responsibilities

• During your “on call” week respond to all incoming patient applications

• Informational phone calls with RG families to explain how we help

• Work with PAT to determine the right site for each family and proceed with patient

sequencing and research navigation by coordination of services

• Keep information in your Patient Dashboard tab up to date, especially the current status

• BCC the PAT team on all of your email correspondence with RG families and colleagues

• Be prompt with responses to patients and RG colleagues, at least within 3 days

• During patient calls, try to be as understanding as possible. All families are different and

some may be harder to work with than others

• Keep the family and PAT updated throughout the whole process

Qualifications

• Bachelor’s Degree or expected Graduation date for a Bachelor’s degree in a science or health

related field

• Well-organized and detail oriented; willing to take on additional responsibilities and

challenges.

• Exceptional communication skills

• Experience or interest in the medical, research and non-profit field

The Patient Advocate Associate (PAA) works as part of the Patient Advocacy Team (PAT) in

Rare Genomics Institute (RG). A PAA RG is intimately involved with patients, walking

incoming families through the process of obtaining genetic sequencing…

Details at a glance

  • Remote Possible
  • Groups Welcome
  • International Volunteers Welcome

Location

5225 Pooks Hill Rd, Suite 1701N, Washington, DC Bethesda, MD 20814
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