About I AM ALS
I AM ALS is a patient-centric movement revolutionizing how to end disease. The nonprofit provides critical support and resources to people with ALS, caregivers and loved ones. We empower advocates to raise awareness and lead the movement against ALS in driving the development of cures. Founded in 2019 by husband and wife team Brian Wallach and Sandra Abrevaya, I AM ALS was born out of their desire to rewrite the ALS story for Brian and the tens of thousands of other people with ALS.
ALS, also known as Lou Gehrig's disease, is currently a fatal disease with no cures. It attacks cells in the body that control movement and gives most people living with the disease no more than five years to live. It makes the brain stop talking to the muscles, causing increased paralysis over time. Ultimately, people with ALS become unable to eat, breathe or move on their own.
This is an exciting volunteer opportunity to help build a new program that will connect those living with ALS to support and resources that can improve quality of life, and bring more people into the movement to end ALS. We need passionate people like you to achieve this!
As an Outreach Advocate with I AM ALS’ Outreach Advocate Program, you will be working to expand access to support resources and services, and grow the ALS movement within communities that I AM ALS currently is not reaching. With your assistance, we will help people living with and impacted by ALS feel empowered, informed, engaged and supported. Outreach Advocates will have the opportunity to participate in social media outreach and/or local community outreach through this program.
Note: The Outreach Advocate Program works uniquely with people from specific populations to do both social media and local engagement outreach. The program supports the I AM ALS Community Support programs, by expanding access to all resources available. Outreach Advocates will learn how to use social media to engage and mobilize their community, and will share resources and build relationships with local healthcare institutions and organizations all while ensuring people impacted by ALS are getting the support they need. Outreach Advocates will not meet weekly and will do independent work, only coming together for training sessions and check-ins.
Scope of Expectations
Together, we will increase the number of people receiving I AM ALS support services and using our platform to further the movement to end ALS. Outreach Advocates can choose to do social media outreach and/or local community outreach through this program after attending all learning sessions.
Volunteer Options: Social Media Outreach and/or Local Community Outreach
Volunteers should be:
I AM ALS is committed to the safety and wellbeing of you and your local community members. Based on the CDC’s guidance and recommendations, we ask that all volunteers adhere to local and federal health and safety guidelines while representing I AM ALS in the community. We appreciate your support and commitment to the ALS community.
We understand that everyone’s ability to commit their time looks different. We want to remain flexible with your schedules and ask you to commit three hours per month to the I AM ALS’ Outreach Advocate Program, beyond the initial orientation and additional mandatory training sessions. Thank you for your dedication to the ALS movement and community.
Each I AM ALS Outreach Advocate doing local community outreach will receive a t-shirt from I AM ALS which should be worn when representing I AM ALS in the community.
Online and/or locally in Bismarck, ND
About I AM ALS
I AM ALS is a patient-centric movement revolutionizing how to end disease. The nonprofit provides critical support and resources to people with ALS, caregivers and loved ones. We empower advocates to raise awareness and lead…
Please attach a resume and a document answering the following questions.