DIRECTOR OF REAL-WORLD EVIDENCE (RWE)

Human Health Project (HHP) is a holistic health literacy charity. Our mission is to improve the health of the underserved and vulnerable through holistic information, education and advocacy. Our objective is to empower people to manage their own health with improved outcomes and no medical errors. For more information, please visit our website including viewing our "Shared Patient Information" program page which includes 50 pages of reports on both our Migraine and Lupus and feedback received from people who reviewed the reports in the section, "What Our Members are Saying" - https://tinyurl.com/4c5y3mfa and our "Healthcare Access Program" which includes short video courses in our Learning Academy - https://tinyurl.com/4xwdz5wh , Patient Advocacy Workshops in Los Angeles, - https://tinyurl.com/mryave5x and in Northern Ireland - https://tinyurl.com/nhj6kp7p and our Online Peer to Peer Events - https://tinyurl.com/5ddmxuyn

Human Health Project (HHP) is recruiting a volunteer Director of Real-World Evidence (RWE) to help shape the methodology and scientific framework for our Shared Patient Information (SPI) initiative — a next-generation platform focused on structured lived-experience intelligence for chronic and complex health conditions.

SPI combines:

• AI-assisted adaptive micro-surveys
• longitudinal patient experience tracking
• structured symptom/trigger/treatment intelligence
• real-world patient-reported outcomes
• anonymized insight generation

We are seeking a leader with experience in one or more of:

• Real-World Evidence (RWE)
• observational studies
• patient-reported outcomes (PROs)
• HEOR
• epidemiology
• pharma/CRO evidence strategy
• clinical research methodology

Responsibilities:

• Advise on SPI scientific methodology
• Help define structured data standards
• Guide evidence quality frameworks
• Ensure data collected aligns with pharma/CRO needs
• Advise on longitudinal cohort design
• Support partnership credibility

Ideal Background:

• Pharma, CRO, digital health, academia, or outcomes research
• Experience with patient-centered evidence generation
• Familiarity with FDA/EMA perspectives on RWE is highly valued

This is an opportunity to help build an ethical, patient-centered shared intelligence infrastructure designed to improve healthcare understanding globally.

Remote volunteer role.

Flexible hours.