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ONG (Setor Social)
Head of Advocacy and Communications at the World ME Alliance
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About the Role
Are you a strategic thinker who loves connecting people, shaping ideas, and driving meaningful global change?
The World ME Alliance is seeking a Head of Advocacy and Communications — a multidimensional role at the heart of an inspiring international movement to transform understanding and care for people with Myalgic Encephalomyelitis (ME).
This is an opportunity to work with extraordinary people and organisations from across the world — from patient advocates and clinicians to global health leaders — to amplify the collective voice of millions of people living with ME.
The Alliance represents a patient population that has been neglected and stigmatised, and this role offers a rare chance to make a tangible difference for one of the most marginalised groups in global health.
You’ll lead the development and delivery of our global advocacy, policy, and communications strategies, shaping campaigns that capture international attention, influencing institutions like the World Health Organization, and strengthening collaboration among our member organisations worldwide.
It’s both a hands-on and strategic role — perfect for someone who can move seamlessly between high-level policy engagement and creative storytelling, between coordinating global partners and producing compelling digital content.
What You’ll Do
- Lead and grow a global network of member organisations, building strong and equitable partnerships, while managing the day-to-day running of the organisation.
- Develop and deliver global advocacy and communications strategies.
- Shape campaigns such as World ME Day, uniting voices worldwide for shared impact.
- Create engaging content, digital resources, and policy briefings that inspire action.
- Represent the Alliance in international policy spaces and global health conversations.
You’ll work closely with the Alliance’s Co-Chairs and leadership team, reporting to either Action for ME (UK) or Solve M.E. (US) depending on your location.
About You
You’re an experienced communicator, campaigner, or advocate who thrives on collaboration and connection. You have:
- Proven experience in communications, advocacy, or policy work — ideally in a global or health context.
- The ability to turn complex information into clear, compelling messages and digital content.
- Strong relationship-building skills and a commitment to inclusive, equitable global collaboration.
- Empathy, resilience, and a deep motivation to work for positive change.
If you want your skills to contribute to something that truly matters — giving voice to a community that has too often been unheard — this role offers purpose, creativity, and connection in equal measure.
About the World ME Alliance
The World ME Alliance brings together organisations from across the globe to drive change for the millions of people living with Myalgic Encephalomyelitis (ME). Through international collaboration, shared campaigns, and joint advocacy, the Alliance amplifies the collective voice of the ME community to influence governments, health agencies, and global institutions such as the World Health Organization (WHO).
Our members are leaders in their countries, united by a shared mission: to secure recognition, research, and care for a disease that has long been neglected and stigmatised. Together, we work to ensure that people with ME are no longer left behind in global health.
Location
We are open to applicants from the UK, or those living within 3 hours of the Pacific Timezone, either in the USA or beyond. To receive a country specific information pack about this role please email info@worldmealliance.org noting your country and time zone (or approximate location).
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Your CV should include your country and time zone (or approximate location), as this role may be contracted through either Action for ME in the UK or Solve M.E. in the US depending on where the successful candidate is based.
Along with your CV, your cover letter should, in no more than two pages, explain your reason(s) for applying for this role and how you fit all aspects of the person specification set out above.
Strong applicants will list each person specification bullet point related to experience, skills and behaviours and provide evidence of how they meet each of these criteria. If you are applying on a job-share basis, please indicate your preferred working hours per week in your application.
