Director of Support and Education

Director of Support and Education

Location: Remote (U.S. based preferred)

Reports to: Vice President of Partnerships and Programs

Status: Full-time, Exempt

About the Myelodysplastic Syndromes Foundation

The Myelodysplastic Syndromes (MDS) Foundation is the global nonprofit leader dedicated to improving

the lives of patients and families affected by MDS through patient support, education, research,

advocacy, and strategic collaboration. We serve as a trusted resource for patients, caregivers, healthcare

professionals, researchers, and industry partners worldwide while working to accelerate better

outcomes and, ultimately, cures.

Position Overview

The Director of Support and Education leads the MDS Foundation's patient support, caregiver

engagement, and educational programming, ensuring the Foundation delivers innovative, high-quality

resources that improve the lives of patients, caregivers, and healthcare professionals worldwide.

Reporting to the Vice President of Partnerships and Programs, the Director is responsible for the

strategy, development, implementation, and continuous improvement of the Foundation's patient and

professional education, support services, and community engagement initiatives. This role ensures

programs are evidence-based, responsive to the evolving needs of the MDS community, and aligned with

the Foundation's broader mission, partnership strategy, and organizational priorities.

Serving as the Foundation's leader for patient engagement and education, the Director works closely

with patients, caregivers, clinicians, researchers, and industry partners to elevate patient voices, identify

unmet needs, and translate real-world insights into impactful programs, educational initiatives,

partnership opportunities, and research priorities.

The Director will also analyze patient and caregiver feedback, community insights, and program

outcomes to identify emerging needs and inform the Foundation's educational strategy, program

development, partnership opportunities, and organizational priorities. The ideal candidate combines

clinical expertise with strategic program leadership and a deep commitment to patient-centered care.

They thrive in a collaborative, mission-driven environment and are equally comfortable engaging directly

with patients, developing innovative educational programs, analyzing community insights, and working

cross-functionally to expand the Foundation's impact.

Key Responsibilities

Patient and Caregiver Support

• Oversee and manage the Foundation’s patient and caregiver helpline, ensuring timely, accurate,
• and compassionate responses to MDS-related inquiries.
• Serve as a trusted clinical resource for patients, caregivers, and healthcare professionals seeking
• information on MDS, treatment pathways, clinical trials, and supportive care.
• Make referrals to Centers of Excellence and connect patients to clinical experts or second
• opinions when appropriate.
• Establish and maintain high standards for patient communication, education, and support services
• Monitor and engage with patient and caregiver activity on the MDS Exchange, providing guidance, support, or clinical expertise as needed.

Education Strategy and Program Delivery

• Lead the strategy, planning, and execution of patient, caregiver, and HCP educational programs, including webinars, virtual and in-person forums, and conference-based education.
• Oversee program logistics, timelines, budgets, vendors, and faculty for both in-person and virtual programs to ensure high-quality delivery and strong participant experience.
• Evaluate program performance and impact using attendance, engagement, and feedback metrics, and report outcomes internally and externally as appropriate.

Educational Content and Resources

• Oversee the Foundation’s library of educational resources, including print, digital, and multimedia content.
• Ensure all materials are scientifically accurate, current, accessible, and aligned with best practices in MDS care.
• Identify gaps in existing resources and lead the development of new content to address evolving community needs.
• Identify opportunities to expand educational offerings through innovative formats, digital engagement, and emerging technologies.

Clinical and Disease Expertise

• Serve as the Foundation’s primary clinical and disease resource on MDS, ensuring scientific and clinical accuracy across patient-facing, educational materials, and support resources.
• Stay current on MDS research, treatment advances, and standards of care, translating complex information into clear, patient-centered guidance.
• Collaborate with medical advisory boards, Board of Directors, Centers of Excellence, and external clinical experts to inform programs and content.
• Represent the Foundation at patient education programs, professional meetings, conferences, and community events, serving as a trusted clinical and educational resource.

Patient Insights, Surveys and Needs Assessments

• Design, implement, and oversee patient, caregiver, and HCP surveys and needs assessments.
• Analyze qualitative and quantitative data to identify trends, disparities, unmet needs, and emerging issues within the MDS community.
• Ensure patient-reported insights are systematically captured, synthesized, and shared across the organization to inform strategy and decision-making.

Cross-Functional Collaboration and Patient Insights

• Partner with internal teams to translate patient insights into program design, education strategy, and support offerings.
• Contribute patient-centered insights to funding proposals, grant applications, reports, and partner communications.
• Support research, educational, and partnership initiatives by providing real-world patient perspectives and needs-based insights.
• Identify opportunities to leverage patient experience and community insights to strengthen educational initiatives, research priorities, strategic partnerships, and organizational planning.

Qualifications & Experience

Required / Preferred

• Bachelor’s degree required; advanced degree in nursing, healthcare, public health, health education, or a related field strongly preferred
• Clinical background in hematology, oncology, or a related specialty preferred (hematology nurse
• highly desirable but not required)
• 7+ years of experience in patient care, patient advocacy, healthcare education, or related roles
• Demonstrated experience working directly with patients and caregivers, particularly with complex or rare diseases
• Experience developing in-person and virtual educational programs and content for patient and/or HCP audiences from conception to implementation
• Experience working with pharmaceutical companies, medical advisory boards, or healthcare professionals preferred

Skills & Competencies

• Deep understanding of patient-centered care and the caregiver experience
• Ability to communicate complex medical and scientific information clearly, accurately, and compassionately
• Strong presentation/public speaking and facilitation skills, with experience delivering educational programs to diverse patient and professional audiences
• Experience designing and analyzing surveys, needs assessments, or patient-reported outcomes preferred
• Strong analytical and strategic thinking skills with the ability to translate insights into action
• Excellent project management and cross-functional collaboration skills
• High level of professionalism, empathy, discretion, and mission alignment
• Comfort working in a fast-paced, remote environment; experience with virtual education platforms preferred

Compensation

We offer a competitive and thoughtfully designed compensation package that reflects the importance of

this role and supports our team’s well-being, flexibility, and long-term success:

• Competitive annual salary of $90,000-$125,000, commensurate with experience
• Comprehensive health benefits, including medical, dental, and vision coverage
• 401(k) with employer match to support long-term financial planning
• Flexible paid time off (PTO) policy that encourages rest and recharge
• Generous holiday schedule, including organizational closures around major holidays
• Flexible/remote work environment, with a focus on outcomes and work-life balance

Why Join The MDS Foundation?

This is a unique opportunity to help shape how patient experience, education, and community insights drive the future of care for people affected by MDS. As a key member of the Foundation's Partnerships and Programs team, the Director of Support and Education will play a central role in elevating patient voices, creating and expanding innovative education and support programs, and ensuring the real-world experiences of patients and caregivers inform advocacy, partnerships, research priorities, and organizational strategy.

• Comprehensive health benefits, including medical, dental, and vision coverage
• 401(k) with employer match to support long-term financial planning
• Flexible paid time off (PTO) policy that encourages rest and recharge
• Generous holiday schedule, including organizational closures around major holidays
• Flexible/remote work environment, with a focus on outcomes and work-life balance

English fluency required; bilingual in Spanish or other languages are a plus.