Part-Time Foundation Relations Manager

Part-Time Foundation Relations Manager

Location: Virtual

Category: Part-time (20 hours per week)

FLSA Status: Non-Exempt

Reports to: Chief Development Officer

To apply, send your resume, cover letter (INCLUDE POSITION NAME), and salary requirements to HR@cholangiocarcinoma.org. All applicants MUST submit a cover letter, resume, and salary requirements to be considered.

Position Overview

We are seeking a highly organized and resourceful Part-Time Foundation Relations Manager to play a critical role in advancing our mission through research and patient advocacy initiatives. This part-time, remote role is responsible for developing and managing a robust portfolio of Foundation and institutional funders, aligning opportunities with organizational priorities in research, patient support, education, and access to care. The ideal candidate is a strategic thinker and relationship builder who can communicate complex health issues with clarity and compassion.

About Cholangiocarcinoma Foundation

The Cholangiocarcinoma Foundation (CCF) is the only U.S.-based nonprofit organization solely focused on cholangiocarcinoma (bile duct cancer), a rare but aggressive disease that affects approximately 15,000 people annually in the United States. Founded in 2006 in Salt Lake City by a family who lost a loved one to this devastating cancer, CCF has grown into a global leader in patient support, education, advocacy, and research funding.

Driven by its core values—patients first, collaboration, innovation, and urgency—CCF operates in a fast-paced environment, mobilizing resources and expertise worldwide to accelerate progress. As a virtual organization with team members across the U.S. and internationally, CCF connects a global audience of patients, caregivers, clinicians, and researchers through cutting-edge programs and partnerships. The Foundation is recognized for advancing innovative research, championing patient-centered care, and responding with urgency to the needs of a growing and underserved community.

Primary Responsibilities

Grant Strategy & Management

• Contribute to the development team’s revenue goal of over $10 million annually
• Develop and implement a strategic plan to grow Foundation and institutional support at CCF to raise $500,000-$1m annually (subject to year-over-year increase)
• Identify, cultivate, solicit, and steward Foundation partners, with a strong emphasis on grant writing and reporting.
• Maintain a comprehensive grants calendar to track deadlines, reporting requirements, and renewal opportunities.
• Develop tailored, data-driven proposals that align funder interests with programs in medical research and patient advocacy.
• Manage application and reporting processes to ensure compliance with funder requirements.
• Collaborate cross-functionally to gather program data, budgets, program specifics, and impact stories required for proposals.
• Work in close collaboration with Project Manager and department leads to ensure grant management is organized and all deliverables are timely.

Relationship Building & Stewardship

• Seek out relationships with funding institutions.
• Cultivate and steward relationships with Foundation program officers and institutional donors.
• Coordinate Foundation meetings, funder briefings, and special engagement opportunities.
• Represent the organization professionally and persuasively to external audiences.
• Draft high-quality reports that reflect both scientific rigor and human-centered impact.

Research & Portfolio Development

• Conduct ongoing research to identify new institutional funding prospects aligned with our mission.
• Maintain accurate and up-to-date pipelines of institutional funders.
• Identify and qualify new institutional funding opportunities aligned with our healthcare mission and strategic plan.
• Monitor trends in medical philanthropy, health equity, and research funding to inform approach and messaging.

Skills, Qualifications, Requirements

Required

• 3-5 years of experience in Foundation relations, grant writing, or institutional fundraising.
• Bachelor’s degree or equivalent professional experience required.
• Demonstrated success in securing and managing grants of $25,000+ from private or corporate foundations.
• Exceptional writing, editing, and storytelling skills.
• Highly organized with strong project management skills and attention to detail.
• Strong attention to detail and ability to manage competing priorities.
• Ability to collaborate across departments and communicate effectively with program staff, finance, and leadership.
• Demonstrated ability to work both independently and collaboratively in a fast-paced environment.
• Familiarity with fundraising databases (Raiser’s Edge preferred but not required) and research tools.
• Ability to travel to Salt Lake City, UT, twice a year.
• Successful completion of a background check.

Additional Preferred Skills and Qualifications

• Experience working in a small or growing nonprofit setting.
• Knowledge of move management principles or donor pipeline development.
• Basic knowledge of fundraising strategy, donor cycles, and stewardship best practices.
• Ability to work virtually - this is a part-time, work-from-home position. Experience working in a virtual environment is preferred.
• Familiar with project management software (ASANA preferred but not required).

Work Environment and Physical Requirements

• This is a fully remote position, requiring a dedicated, professional home office environment with reliable internet access.
• The role involves prolonged periods of sitting, working on a computer, attending virtual meetings, and managing digital communications.
• Flexibility to respond to time-sensitive issues during regular business hours.
• Ability to manage multiple tasks and priorities in a fast-paced virtual environment.
• Occasional travel is required for organizational events at least twice annually.

COMPENSATION

Salary Range: $35-38/hour, commensurate with experience and skill set.

Benefits include A generous PTO package that includes paid winter break, and a 401(k).

LOCATION

The Foundation is a virtual organization. Candidates must reside in the United States and be authorized to work there. The selected candidate will be required to travel as needed.

To apply, send your resume, cover letter (INCLUDE POSITION NAME), and salary requirements to HR@cholangiocarcinoma.org. All applicants MUST submit a cover letter, resume, and salary requirements to be considered.

This job description is not designed to cover or contain a comprehensive listing of activities, duties, or responsibilities that are required of the employee. Duties, responsibilities, and activities may change, or new ones may be assigned at any time, with or without notice. Nothing in this job description alters an employee's at-will status and is meant only as a guide, not a contract of employment.

The Cholangiocarcinoma Foundation's policy provides equal opportunities without regard to race, color, religion, age, gender, sex, national origin, disability, veteran status, or any other characteristic protected by law.

August 2025