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Setor Social (ONG / OSC / Coletivos / Fundações)

The Marfan Foundation

Port Washington, NY | http://www.marfan.org
Logo de The Marfan Foundation
Faz parte desde maio 1999


Sobre Nós

The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders.
  • We pursue the most innovative research and make sure that it receives proper funding.
  • We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment.
  • We provide relentless support to families, caregivers, and healthcare providers.

We will not rest until we’ve achieved victory—a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.

The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders.
  • We pursue the most innovative research and make sure that it receives proper funding.
  • We create an informed public and…

Áreas Temáticas incluem

  • Saúde & Medicina

Localização

  • location icon
    22 Manhasset Avenue, Port Washington, NY 11050, United States

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