The Marfan Foundation

• We pursue the most innovative research and make sure that it receives proper funding.
• We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment.
• We provide relentless support to families, caregivers, and healthcare providers.

We will not rest until we’ve achieved victory—a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.