Conquer Chiari

The C&S Patient Education Foundation is a 501(c)(3) non-profit organization dedicated to improving the experiences and outcomes of Chiari and syringomyelia patients through education, awareness, and research. Conquer Chiari is our informal name, our goal, and our website. Chiari and syringomyelia are complicated diseases, which require complex solutions. No single action will beat them, but the combined efforts of many people, on many fronts will. For far too long these diseases have destroyed people's lives, it’s time to fight back.

Since 2004...

Education:

380+ Research Articles / 50+ Personal Stories / 40+ Informative Posters & Handouts / 12+ Presentations - Nearly 5,000 copies of the book, Conquer Chiari: A Patient’s Guide, sold world-wide

Awareness:

Walk Across America - 47 states, 100,000+ walkers since inception - September 2019 Chiari Awareness Month social media posts reached nearly 1 million people

Research:

Largest NGO funder of Chiari research in the world, with $4.1+ million in grants - These grants have generated 70+ published, peer-reviewed journal articles - Grants have also led to an additional $1 million in NIH Chiari focused research grants

Established the world’s first multi-disciplinary, independent Chiari focused research facility, the Conquer Chiari Research Center - Launched the innovative Chiari1000 (chiari1000.uakron.edu) - Organized 4 professional research conferences