ONG (Setor Social)

Los Angeles Angelman Syndrome Walk

Los Angeles, CA
|
www.angelman.org/

  • Missão

    The Angelman Syndrome Foundation raises funds for Angelman syndrome research and supports families. Use this website to keep abreast of current information regarding research, education, general information and therapies for Angelman syndrome. If you have any questions or would like additional information please email the ASF at info@angelman.org

    Sobre Nós

    Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. AS is often misdiagnosed as cerebral palsy or autism due to lack of awareness. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome will require life-long care.

    Because of its genetic relationship to autism and other disorders, many researchers believe that curing Angelman syndrome will lead to cures for similar disorders. Angelman syndrome research is on the cusp of potential treatments to reverse the debilitating symptoms of Angelman syndrome.

    Causas incluem:

    • Deficiência
    • Voluntariado

    Localização & Contato

    • 562-537-5150
    • Shane's Inspiration at Griffith Park, 4800 Crystal Springs Rd., Los Angeles, California, US
      4800 Crystal Springs Rd.
    Illustration

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