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ONG (Setor Social)
Hope for Marian
Missão
Hope for Marian Research Foundation is a registered 501(c)(3) charitable organization intent on finding a cure and support patient accessto treatments for NPC.
Hope for Marian Research Foundation is a registered 501(c)(3) charitable organization intent on finding a cure and support patient accessto treatments for NPC.
Sobre Nós
Children and adults are in the fight of their lives against fatal Niemann-Pick Type C. Without treatment and a cure they will lose their ability to move, speak, eat, breathe and live.
This disease strikes all ages, most frequently children. It's the short term memory loss of Alzheimer's, the tremors of Parkinson's and the systemic decline of ALS.
We give a voice to patients around the world advocating universal access for life sustaining medicines for this generation of children and adults fighting NPC.
Children and adults are in the fight of their lives against fatal Niemann-Pick Type C. Without treatment and a cure they will lose their ability to move, speak, eat, breathe and live.
This disease strikes all ages, most frequently children. It's the short term memory loss of Alzheimer's, the tremors of Parkinson's and the systemic decline of ALS.
We give a voice to patients around the world advocating universal access for life sustaining medicines for this generation of children and adults fighting NPC.
Causas incluem:
- Criança & Adolescente
- Saúde & Medicina
- Pesquisa & Ciências Sociais
Localização & Contato
- meredith@hopeformarian.org
- Bellingham, MA 02019, USA
