Executive Director (part-time)

Executive Director — National Neutropenia Network

Part-Time (approx 20+ hrs/week) | Remote (U.S.) | Some travel required

The National Neutropenia Network (NNN) is seeking a part-time executive level leader for our small but growing nonprofit, which supports patients and families affected by neutropenia, a rare condition that impairs the body's ability to fight infection. Reporting to the Board of Trustees, the Executive Director is a highly independent operational and strategic leader, setting direction for NNN's programs, partnerships, and growth – working with the Board to translate vision into action, identifying and recommending new opportunities to expand our reach and impact.

This is a visible, externally facing leadership role. The Executive Director represents NNN, working directly with patients, healthcare providers, donors, and pharmaceutical partners, and serves as a strategic advisor to the Board.

You'll lead:

• Organizational strategy and day-to-day operations
• Programming, including our Ambassador and Peer Support programs
• Fundraising and partnerships (grants, donor relations, sponsorships)
• NNN's biennial Family Retreat and other signature events
• Communications and public visibility for NNN's mission

You bring: nonprofit, healthcare, or advocacy leadership experience; strong relationship-building and communication skills; and the independence and judgment to move ideas from concept to execution.

We welcome candidates from varied backgrounds - even if you don't meet every qualification, we encourage you to apply if you are interested.

Compensation: $30/hour, approximately 20 hours per week

Application: Resume with cover letter

Remote work, independence.