Cure Sanfilippo Foundation

Every parent dreams about their kid’s future and watching it unfold.

Sanfilippo Syndrome takes all that away, replacing it with pain and suffering. The child experiences severe dementia and dies in their mid-teens. All before their parents eyes.

Cure Sanfilippo Foundation architects and funds cutting-edge research to accelerate discovery of a treatment or cure for Sanfilippo Syndrome so parents can dream of their children’s futures again.

Help save children.

Who we are. What we do. How we operate.

We are Cure Sanfilippo Foundation and we have a clear mission: to advocate for and fund research that could give children with Sanfilippo syndrome a chance at a better life by finding a treatment or cure for the disease. And we remain passionately focused on that goal. The results and progress made so far have been largely thanks to partner-families joining our Foundation around the country and the world.

We recognize every family of a child with Sanfilippo syndrome is on their own unique journey. This difficult journey can often be a lonely and isolating one. Cure Sanfilippo Foundation is a place to join with other parents and families going through the same, and be part of changing the fate for children with Sanfilippo. We do this together, primarily through advocacy, spreading awareness, and fundraising. Cure Sanfilippo is proud of our laser-focused mission, professionalism, demonstrated results, transparency, collaboration, and information-sharing. We seek families that would like to join these efforts to better the lives of children.

We believe that working together creates exponential power and opportunity to find a treatment or cure for Sanfilippo. Voices raised together are heard more loudly. Work done together is done faster. In addition, it is empowering for a family to take a stand against this disease that currently has no treatment options. A family will see their community rally in honor of their child and their circle of awareness and influence grow. This upswell of support and action truly makes a tangible difference that is seen through development of more clinical trials and faster movement toward approved, effective, and available therapies for all children with Sanfilippo.

This is why we hope every family of a child with Sanfilippo will consider partnering with Cure Sanfilippo Foundation and joining this mission. If this sounds like something you would want to be part of, we hope you’ll reach out to us to become a partner-family. We welcome you.

Please read more about how we can work together by expanding the four sections below.