Crazy by Chiari

To aid in the advancement of research and advocacy of chiari malformations and associated comorbidities with the goal of closing the gap between patients and clinicians.

Our Mission and Service

CBC serves individuals diagnosed with Chiari Malformation and related neurological conditions. The organization focuses on:

• Patient Advocacy: Providing support services that help patients navigate health systems and communicate effectively with medical providers.
• Clinical Education: Developing peer-reviewed anatomical illustrations and educational materials to help patients and families understand specialized neurological diagnoses.
• Research Integration: Coordinating with medical specialists to ensure that educational content meets the highest standards of clinical accuracy.

Core Values

The organization is built on a foundation of ethical leadership and transparency:

• Integrity: We believe in an "internal compass" that prioritizes ethical standards and patient well-being above all else.
• Intellectual Rigor: Our materials are developed through a rigorous peer-review process involving a network of specialized surgeons and department chairs.
• Empowerment through Knowledge: We aim to demystify complex medical data, giving patients the tools they need to be active participants in their own care.

Organizational Structure & Milestones

CBC is a community-driven entity supported by a dedicated leadership team and an elite advisory board:

• Official Recognition: Registered as a non-profit in Maryland on December 24, 2025, and received official 501(c)(3) tax-exempt status from the IRS on February 22, 2026.
• Professional Network: Our advisory board consists of prominent neurosurgeons from leading institutions, including specialists from Johns Hopkins, Weill Cornell and other major university health systems.
• Community Engagement: We prioritize grassroots involvement, such as participating in community 5K walks and neurosurgical conferences to raise awareness and support.