Alport Syndrome Foundation

The Alport Syndrome Foundation (ASF) is the leading non-profit organization in the United States serving and giving a voice to the community of patients and families affected by this rare genetic kidney disease. The ASF mission is to improve the lives of patients through education, empowerment, advocacy and research. ASF has grown to become an international presence in outreach, education and research for Alport Syndrome, as it works to realize its vision of making Alport Syndrome a treatable disease and finding a cure.