ONG (Setor Social)
Pachyonychia Congenita Project
Sobre Nós
Support a PC community devoted to development & delivery of therapies to PC patients. Projects include: ·PC website for patients, researchers and clinicians ·Patient Support Meetings ·International PC Research Registry (IPCRR) ·Genetic Testing to identify specific mutations ·International PC Consortium (IPCC) ·Grants for relevant research ·Publications on PC ·TransDerm partnership ·Clinical Trials design and implementation
Causas incluem:
- Criança & Adolescente
- Deficiência
- Educação
- Saúde & Medicina
Localização & Contato
- +18019878758
- info@pachyonychia.org
- Holladay, UT, USA
