Organización sin fin de lucro
Pachyonychia Congenita Project
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Support a PC community devoted to development & delivery of therapies to PC patients. Projects include: ·PC website for patients, researchers and clinicians ·Patient Support Meetings ·International PC Research Registry (IPCRR) ·Genetic Testing to identify specific mutations ·International PC Consortium (IPCC) ·Grants for relevant research ·Publications on PC ·TransDerm partnership ·Clinical Trials design and implementation
Áreas de impacto incluyen
- Infancia y juventud
- Discapacidad
- Educación
- Salud y medicina
Información y contacto
- +18019878758
- info@pachyonychia.org
- Holladay, UT, USA
