EB Research Partnership

Founded by a group of dedicated parents along with Jill and Ed Vedder (Pearl Jam), EB Research Partnership (EBRP) is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening skin disorders that affect children from birth. 

EBRP utilizes an innovative business model of venture philanthropy. When making a grant to a research project we retain the added upside of generating an additional revenue stream if the therapy or product is commercially successful, and use the return on investment to fund additional EB research.