EB Research Partnership

  • NY


132 East 43rd Street
Suite 432
New York
United States

About Us

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

With the community’s support, EB Research Partnership has been aggressively and efficiently funding research since 2010. To date, we have raised over $8 million for research grants and been instrumental in securing an additional $35 million for critical EB research. EBRP has given grants to support the cutting-edge work at institutions such as the University of Minnesota, Stanford University, and the University of Southern California. EBRP helped to create and continues to support research enabling infrastructure to ensure that treatments will get to those in need as swiftly as possible.