ONG (Setor Social)

CFC International

Delmar, NY
|
cfcsyndrome.org

  • Sobre Nós

    Mission and Vision

    Our Mission

    To improve the quality of life through family support, research, and education

    Our Vision

    Advance understanding and treatment of CFC syndrome.

    Our Goals

    • To provide support as needed by people affected by CFC syndrome through outreach, education and information sharing.
    • To ensure that physicians have ready access to the latest information to enable accurate diagnosis and proper symptom treatment.
    • To maintain a registry of CFC individuals.
    • To foster and facilitate research on CFC syndrome including development of appropriate treatments.
    • To maintain a broad base of funds needed to accomplish our mission and goals.
    • To provide sustainability of the organization through continuity and growth.
    • To support a collaborative relationship among the conditions of the RAS pathway.

    Causas incluem:

    • Criança & Adolescente

    Localização

    • 502 Delaware Avenue, Delmar, NY 12054, United States
    Illustration

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