To apply, send your resume, cover letter (INCLUDE POSITION NAME), and salary requirements to HR@cholangiocarcinoma.org. All applicants MUST submit a cover letter, resume, and salary requirements to be considered.
Director of Data and Technology
Location: Virtual
Category: Full-time; salaried
FLSA Status: Exempt
Reports to: Chief Financial Officer (CFO)
Position Overview
We are seeking a Director of Data and Technology to oversee the Foundation’s data systems, networks, and technology infrastructure. Reporting to the CFO, this role organizes, stores, extracts, and analyzes data while maintaining the Foundation’s security and confidentiality standards. The Director will develop and implement data collection, retention, and security policies in line with industry best practices, while working closely with staff across the organization to manage and leverage data effectively. Responsibilities include managing all technology systems, providing tech support to all staff members, streamlining data processes, and ensuring secure, efficient information flow. The Director will lead the Foundation’s integrative approach to AI technologies and best practices—including responsible data use, bias mitigation, system governance, and privacy compliance—owning the integration of ethical, innovative AI solutions that support the Foundation’s mission and values.
About Cholangiocarcinoma Foundation
The Cholangiocarcinoma Foundation (CCF) is the only U.S.-based nonprofit organization solely focused on cholangiocarcinoma (bile duct cancer), a rare but aggressive disease that affects approximately 15,000 people annually in the United States. Founded in 2006 in Salt Lake City by a family who lost a loved one to this devastating cancer, CCF has grown into a global leader in patient support, education, advocacy, and research funding.
Driven by its core values—patients first, collaboration, innovation, and urgency—CCF operates in a fast-paced environment, mobilizing resources and expertise worldwide to accelerate progress. As a virtual organization with team members across the U.S. and internationally, CCF connects a global audience of patients, caregivers, clinicians, and researchers through cutting-edge programs and partnerships. The Foundation is recognized for advancing innovative research, championing patient-centered care, and responding with urgency to the needs of a growing and underserved community.
Primary Responsibilities
The essential duties and responsibilities of this position include, but are not limited to, the following areas:
Data Management
Technology Management
AI Innovation
Skills, Qualifications, Requirements
Work Environment and Physical Requirements
COMPENSATION
Salary Range: $85,000 - $90,000
Benefits include Health insurance (medical, dental, vision), full-paid life and disability insurance, a generous PTO package that includes summer Fridays and a paid winter break, and a 401(k)—additionally, a discretionary annual bonus up to 5%.
LOCATION
The Foundation is a virtual organization. Candidates must reside in the United States and be authorized to work there. The selected candidate will be required to travel as needed.
To apply, send your resume, cover letter (INCLUDE POSITION NAME), and salary requirements to HR@cholangiocarcinoma.org. All applicants MUST submit a cover letter, resume, and salary requirements to be considered.
This job description is not designed to cover or contain a comprehensive listing of activities, duties, or responsibilities that are required of the employee. Duties, responsibilities, and activities may change, or new ones may be assigned at any time, with or without notice. Nothing in this job description alters an employee's at-will status and is meant only as a guide, not a contract of employment.
The Cholangiocarcinoma Foundation's policy provides equal opportunities without regard to race, color, religion, age, gender, sex, national origin, disability, veteran status, or any other characteristic protected by law.
To apply, send your resume, cover letter (INCLUDE POSITION NAME), and salary requirements to HR@cholangiocarcinoma.org. All applicants MUST submit a cover letter, resume, and salary requirements to be considered.
Director of Data and Technology
Location: Virtual
Category: Full-time; salaried
FLSA Status: Exempt
Reports to: Chief Financial Officer (CFO)
Position Overview
We are seeking a Director of Data and Technology to oversee the Foundation’s data systems, networks, and technology infrastructure. Reporting to the CFO, this role organizes, stores, extracts, and analyzes data while maintaining the Foundation’s security and confidentiality standards. The Director will develop and implement data collection, retention, and security policies in line with industry best practices, while working closely with staff across the organization to manage and leverage data effectively. Responsibilities include managing all technology systems, providing tech…
To apply, send your resume, cover letter (INCLUDE POSITION NAME), and salary requirements to HR@cholangiocarcinoma.org. All applicants MUST submit a cover letter, resume, and salary requirements to be considered.
To apply, send your resume, cover letter (INCLUDE POSITION NAME), and salary requirements to HR@cholangiocarcinoma.org. All applicants MUST submit a cover letter, resume, and salary…