National Manager, Community Health Fairs & Education

National Manager, Community Health Fairs & Education

Full Time | Remote-First

About Myasthenia Gravis Foundation of America

Established in 1952, the Myasthenia Gravis Foundation of America (MGFA) is the only nationwide organization solely dedicated to serving people affected by Myasthenia Gravis and related disorders. We serve diverse stakeholders including MG patients and family members, scientists and clinicians, national and community volunteers, donors, sponsors, fundraisers, and industry partners.

About the Opportunity

MGFA is seeking a community-focused event management professional to join our team as Manager, Community Health Fairs & Education. This strategic role offers the unique opportunity to build meaningful connections between MG patients, families, healthcare providers, and essential resources through our nationwide network of Community Health Fairs. You'll directly impact patient lives while developing specialized expertise in rare disease community engagement that sets you apart in the nonprofit sector.

Reporting to the National Director, Programs, you'll serve as the operational leader of MGFA's community education initiatives while maintaining collaborative relationships across all departments. This role combines strategic event management with hands-on community building, offering the work-life integration that comes with our remote-first environment while providing meaningful career growth through direct patient impact.

What we look for at MGFA

• Passion for MGFA's mission and patient advocacy - A genuine commitment to improving the lives of those affected by Myasthenia Gravis.
• Collaborative mindset - Ability to work effectively across teams and with diverse community stakeholders.
• Execution focus - Driven to achieve results and translate community needs into actionable programming.
• Strategic thinking - Capacity to see the big picture while managing important local details.
• Ability to operate independently - Comfortable navigating and finding paths forward in diverse community contexts.
• Problem-solving capability - Experience identifying issues and developing innovative solutions that serve patient needs.

What we're looking for in this role

Mission Impact Focus

• Drives community education programs that directly improve MG patient quality of life and healthcare relationships.
• Transforms complex medical information into accessible, actionable community programming.
• Ensures community events align with patient needs and organizational educational priorities.
• Builds and scales community programs that advance MG awareness and local support networks.

Community Engagement Capabilities

• Multi-stakeholder coordination and volunteer leadership development.
• Cultural competency and inclusive programming design.
• Innovative educational program development for diverse patient populations.
• Systems thinking to connect local community impact with national mission goals.

Core Competencies

• Comprehensive event management across multiple simultaneous locations.
• Community partnership development and volunteer network leadership.
• Ability to balance hands-on execution with strategic program development.
• Experience managing complex logistics with diverse stakeholder groups.

Your day-to-day

Annual Program Strategy & Planning

• Execute comprehensive pre-event planning cycle including annual budget development, location assessment and securing, volunteer leader recruitment and training, and strategic partnership development with hotels, sponsors, and community organizations.
• Transform program goals into detailed execution plans with clear timelines, milestone tracking, and contingency strategies for multiple annual events across diverse geographic markets.
• Work with Marketing & Communications to develop integrated marketing campaigns that drive registration, community awareness, and sponsor engagement across multiple channels and demographics.

Event Execution & Management

• Pre-Event Operations: Coordinate speaker confirmations, venue logistics, volunteer briefings, material preparation, and staff scheduling to ensure flawless event delivery across multiple locations.
• Real-Time Support: Provide morning-of-event availability and troubleshooting support for on-site staff and volunteers, ensuring smooth execution across simultaneous events.
• Post-Event Excellence: Execute comprehensive follow-up including data collection, sponsor fulfillment, attendee engagement, and performance analysis to drive continuous improvement.

Community Partnership & Stakeholder Management

• Sponsor & Vendor Relations: Manage complex partnership agreements, ensure compliance with sponsorship benefits, and coordinate vendor participation to enhance educational value.
• National Partner Coordination: Facilitate communication and logistics with presenting partners, including material distribution, discount code management, and benefit fulfillment.
• Local Community Building: Foster relationships with healthcare providers, patient advocacy groups, and community organizations to expand reach and program sustainability.

Volunteer Leadership Development

• Lead monthly volunteer leadership meetings that foster peer collaboration and innovative brainstorming among local community ambassadors.
• Recruit, train, and empower volunteer leaders who serve as local community ambassadors, ensuring sustainable presence and culturally relevant programming.
• Provide ongoing support and development opportunities for volunteer leaders to enhance their advocacy skills and community impact.

Program Innovation & Growth

• Educational Program Development: Design and implement innovative educational experiences like "Get Ready with Me" sessions and enhanced MG Experience demonstrations that evolve with patient needs and conduct monthly Zoom webinars as an ongoing educational initiative designed to educate and engage the MG community nationwide.
• Performance Analytics: Track attendance, engagement, satisfaction, and outcomes to inform strategic decisions and demonstrate community-level impact.
• Scalability Planning: Develop frameworks and processes that support program expansion while maintaining quality standards and local community relevance.

Technology & Process Management

• CRM & Data Management: Utilize Virtuous and other platforms to create seamless registration experiences, track engagement metrics, and maintain comprehensive attendee and volunteer databases.
• Process Optimization: Implement scalable systems and workflows that support program growth while maintaining quality standards and compliance requirements.
• Cross-Functional Collaboration: Partner with Marketing & Communications, Finance, and Program teams to ensure integrated approach to community engagement.

What You Bring

Must-Haves

• Bachelor's degree from an accredited college or university (master's degree in public health, nonprofit management, or related field preferred).
• 3-5+ years of demonstrated experience in event management, community engagement, public health programming, or related nonprofit roles.
• Proven success in managing multiple simultaneous events with complex logistics and diverse stakeholder groups.
• Experience with volunteer recruitment, training, and leadership development.
• Strong project management and organizational skills with attention to detail and ability to manage competing priorities.
• Excellent communication and interpersonal skills across diverse audiences including patients, families, healthcare providers, and corporate partners.
• Proficiency with CRM systems, event management platforms, and database management.
• Comfort with 30% travel schedule including weekend events and multi-city coordination.

Should-Haves

• Experience in healthcare, rare disease, or patient advocacy environments.
• Background in community health education and program development.
• Understanding of patient advocacy principles and healthcare system navigation.
• Experience working with healthcare providers and medical institutions.
• Knowledge of diverse community engagement strategies and cultural competency.
• Budget management and financial oversight experience.

Nice-to-Haves

• Advanced degree in public health, nonprofit management, or related field.
• Background in rare disease or chronic illness patient communities.
• Experience with international or multi-regional program management.
• Event management certification or related professional credentials.
• Bilingual capabilities to serve diverse patient populations.
• Experience working effectively with boards of directors or advisory committees.

Success Indicators

• Event quality: Consistently high attendee satisfaction scores and post-event engagement levels across all annual events.
• Volunteer retention: Increased volunteer leader retention rates and expanded local volunteer networks.
• Community impact: Growth in repeat attendance, healthcare provider participation, and expanded community partnerships.
• Operational efficiency: Streamlined event setup processes and improved cost-per-participant metrics.
• Program innovation: Successful pilot and scaling of new educational formats and engagement strategies.
• Mission alignment: Demonstrated contribution to MGFA's broader educational and advocacy goals through community-level impact.

Cultural Attributes

• Patient-centered philosophy - Connecting educational excellence with meaningful patient impact.
• Community leadership - Building relationships and empowering local advocates across diverse communities.
• Mission-driven problem solving - Inspiring teams through connection to patient advocacy and community support.
• Adaptive execution - Balance of strategic thinking and hands-on management across diverse local contexts.
• Growth mindset - Comfortable optimizing processes and building new community engagement frameworks.
• Commitment to work-life integration - Thriving in our remote-first, flexible environment while managing travel requirements.

What We Offer

At MGFA, we carefully consider a wide range of factors to determine a compensation package. The final offer will consider a wide range of factors including, but not limited to, skill sets, relevant experience, and training.

The salary range is $73,000 - $85,000 per year plus competitive benefits.

Comprehensive Benefits Package:

• Medical, dental, and vision insurance
• Life insurance coverage
• 401(k) retirement plan with employer match
• Remote-first work environment with flexible scheduling
• Professional development opportunities and conference attendance
• Generous paid time off and holidays
• Direct connection to meaningful patient advocacy work
• Opportunity to develop specialized expertise in rare disease community engagement
• Collaborative, mission-driven organizational culture
• Work-life integration in a supportive, smaller organizational environment

Professional Growth Opportunities

• Community leadership development through volunteer network management
• Cross-functional collaboration and organizational influence
• Specialized expertise development in rare disease patient advocacy
• Innovative program building experience in community health education
• Direct access to senior leadership and patient community engagement
• Networking opportunities within the national rare disease advocacy community

Selection Process

1. Initial Screen [30 min]
2. Capabilities & Skills [45 min]
3. Project & Presentation [if necessary]
4. Cross-functional Leadership [45 min]
5. Culture & Values [30 min]
6. Offer

Background Check Requirements

All candidates for employment will be subject to pre-employment background screening for this position, which may include employment and criminal history. All offers are contingent upon the successful completion of the background check. For additional information on the background check requirements and process visit the Equal Employment Opportunity Commission.

MGFA is proud to be an Equal Opportunity Employer. All aspects of employment, including the decision to hire, promote, discipline, or discharge, will be based on merit, competence, performance, and business needs. We do not discriminate on the basis of race, color, religion, marital status, age, national origin, ancestry, physical or mental disability, medical condition, pregnancy, genetic information, gender, sexual orientation, gender identity or expression, veteran status, or any other status protected under federal, state, or local law.

Don't meet every requirement? Studies have shown that women and people of color are less likely to apply to jobs unless they meet every single qualification. At MGFA, we're committed to building a diverse, inclusive, and authentic workplace with a tangible sense of belonging for all our people.

While we encourage people to use AI systems during their role to help them work faster and more effectively, please do not use AI assistants during the application and interviewing process. We want to understand your personal interest in MGFA without mediation through an AI system, and we also want to evaluate your non-AI-assisted communication skills.

What We Offer

At MGFA, we carefully consider a wide range of factors to determine a compensation package. The final offer will consider a wide range of factors including, but not limited to, skill sets, relevant experience, and training.

The salary range is $73,000 - $85,000 per year plus competitive benefits.

Comprehensive Benefits Package:

• Medical, dental, and vision insurance
• Life insurance coverage
• 401(k) retirement plan with employer match
• Remote-first work environment with flexible scheduling
• Professional development opportunities and conference attendance
• Generous paid time off and holidays
• Direct connection to meaningful patient advocacy work
• Opportunity to develop specialized expertise in rare disease community engagement
• Collaborative, mission-driven organizational culture
• Work-life integration in a supportive, smaller organizational environment

Professional Growth Opportunities

• Community leadership development through volunteer network management
• Cross-functional collaboration and organizational influence
• Specialized expertise development in rare disease patient advocacy
• Innovative program building experience in community health education
• Direct access to senior leadership and patient community engagement
• Networking opportunities within the national rare disease advocacy community