KARES Foundation

The KARES Foundation is a nonprofit organization dedicated to supporting individuals and families affected by KDM5C-related disorders, also known as Claes Jensen Syndrome. Their mission is to advance research, raise awareness, and create meaningful community connections so families never feel alone in their journey. Through family conferences, educational resources, and advocacy efforts, KARES works to bring hope, support, and progress to those impacted by this ultra-rare genetic condition.

The KARES Foundation is a family-founded nonprofit built on compassion, connection, and hope. We serve individuals and families affected by KDM5C-related disorders (Claes Jensen Syndrome), a rare genetic condition that impacts development and learning. Because this diagnosis is ultra-rare, many families can feel isolated — our organization exists to change that.

We value community, inclusion, and collaboration. Through family conferences, educational support, research initiatives, and advocacy, we create spaces where families can connect, learn from experts, and build lifelong relationships with others who truly understand their journey. Our heart is to ensure that every family feels seen, supported, and empowered while we work toward better treatments and greater awareness.