KIF1A.ORG

KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder and accelerating research to find a cure. Our goal is clear: to find treatment for every individual living with KIF1A Associated Neurological Disorder. We dream of a world with an easily accessible cure for our kids with KAND.

KIF1A.ORG is a patient-led nonprofit organization dedicated to accelerating research and treatment development for KIF1A-Associated Neurological Disorder (KAND), an ultra-rare and progressive neurodegenerative condition. By fostering a global community of patients, families, scientists, and clinicians, KIF1A.ORG drives collaborative efforts to advance scientific discovery and bring meaningful treatments to those affected by KAND.