Lili Claire Foundation

The Lili Claire Foundation was established in 1998 to honor the memory of Lili Claire Resnick, who was born with a neurogenetic birth condition called Williams syndrome. Tragically, Lili died when she was only six months old after an eighteen-hour open-heart surgery to correct a heart condition associated with the disorder. Lili’s parents founded the organization to give hope to children like Lili, and families like themselves.

As a legacy for Lili, it is our desire to provide a happy, productive, fully-integrated life for individuals living with various neurogenetic birth disorders like Williams syndrome, Down syndrome, Prader-Willi, Fetal Alcohol Syndromand autism. We achieve our mission by developing comprehensive programs and services designed to enhance all aspects of life for individuals living with neurogenetic disorders at our Lili Claire Family Resouce Centers at UCLA, University of Nevada School of Medicine and Vanderbilt University.