Board Members for Myositis Support and Understanding

Board Member Job Description

A fast-growing non-profit focused on a group of rare autoimmune diseases, idiopathic inflammatory myopathy which we refer to in general as Myositis. Myositis Support and Understanding (MSU) is seeking board members to help propel us to the next level. Our all-volunteer organization provides "from the Heart" support to patients, care partners, and family members impacted by Myositis. We host live online support, Facebook support groups, and our Myositis Community on Inspire, we provide financial assistance for patients, we have a robust patient-centered research program and we provide "Simply Put" education. We team up with leaders in the research world to connect patients with medical studies, both pharmaceutical and functional.

Our goal is to help make patients and family members' daily lives better while living with this debilitating, and often intractable disease. No medical experience or relationship to the disease is necessary, only a willingness to help an underserved community of patients, a desire to learn, and time and eagerness to serve! Our board members are spread out all over the United States and meetings are held via conference call and/or video conference calling, so geographical location is not an issue. We have fun while accomplishing our mission, so we promise you will enjoy the work you do with us! Please join our enthusiastic team and make a difference in many lives!

Key Responsibilities:

• Provide governance and oversight aligned with MSU’s mission
• Participate in strategic planning and financial oversight
• Support fundraising efforts and leverage personal/professional networks
• Serve as an advocate and ambassador for MSU
• Help recruit new board members and evaluate organizational leadership

Ideal Candidates:

We’re looking for individuals with leadership experience in business, government, philanthropy, or the nonprofit sector. A strong commitment to MSU’s mission, along with skills in fundraising, finance, advocacy, and community engagement, is essential.

Commitment:

This is a volunteer position. Board members attend bi-monthly meetings, contribute to committee work, and engage in events, fundraising, and strategic planning activities. It’s a meaningful opportunity to grow, lead, and make a difference.

Apply today to help shape the future of MSU!

You can learn more about us on our website at https: //UnderstandingMyositis.org