ONG (Setor Social)
Cure HSPB8
Missão
Our mission is to improve the lives of all people affected by HSPB8 Myopathy and their families. We do this by accelerating the drug development process, building a strong and empowered community and advocating for the community.
Sobre Nós
- Our vision is life free of HSPB8 Myopathy and all its burden.
- Our purpose is to alleviate suffering and empower the patients
- Our strategy is to invest in R&D, support HSPB8 Myopathy families, advocate for the community and grow as an organization
- Our values are urgency, transparency, evidence-based
Causas incluem:
- Saúde & Medicina
- Pesquisa & Ciências Sociais
Localização & Contato
- contact@curehspb8.org
- Calabasas, CA, USA
