Our mission is to improve the lives of all people affected by HSPB8 Myopathy and their families. We do this by accelerating the drug development process, building a strong and empowered community and advocating for the community.
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Our vision is life free of HSPB8 Myopathy and all its burden.
Our purpose is to alleviate suffering and empower the patients
Our strategy is to invest in R&D, support HSPB8 Myopathy families, advocate for the community and grow as an organization
Our values are urgency, transparency, evidence-based
Encuentra oportunidades para cambiar el mundo con las últimas oportunidades de empleo, pasantías/prácticas y voluntariado con impacto social. Además, podrás explorar recursos para generar impacto positivo en tu comunidad.