Our mission is to improve the lives of all people affected by HSPB8 Myopathy and their families. We do this by accelerating the drug development process, building a strong and empowered community and advocating for the community.
About Us
Our vision is life free of HSPB8 Myopathy and all its burden.
Our purpose is to alleviate suffering and empower the patients
Our strategy is to invest in R&D, support HSPB8 Myopathy families, advocate for the community and grow as an organization
Our values are urgency, transparency, evidence-based
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