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Organización Sin Fin de Lucro

Niemann-Pick Disease Group (UK)

East Wemyss, FIF, Reino Unido | http://www.nnpdf.org/npdg-uk
Se unió en diciembre 1998


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The Niemann-Pick Disease Group (UK)is an international, self-help support group which was granted charitable status in 1997. The Group aims to support families of children and young people affected by all types of Niemann-Pick Disease. Through the Group we aim to

  • give and receive emotional support
  • provide assistance through a crisis
  • share resources and ideas about such issues as doctors, clinics, benefits and education
  • provide each other with practical suggestions relating to the day to day care of our children
  • establish enduring relationships with others who, on a personal level, understand the anguish the joys and the recovery of being a parent of a child with a life-limiting condition. If you would like more information please contact us, we are here to help.

The Niemann-Pick Disease Group (UK)is an international, self-help support group which was granted charitable status in 1997. The Group aims to support families of children and young people affected by all types of Niemann-Pick Disease…

Temáticas Incluídas

  • Infancia & Juventud
  • Familia
  • Salud & Medicina

Ubicación

  • location icon
    Kingslaw House, East Wemyss, FIF KY1 4RS, United Kingdom
    East Brae

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