The Ehlers-Danlos Society

The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions.

We support collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD population.

Our goals are world-wide awareness—and a better quality of life for all who suffer from these conditions. Research is at the center of what we do, so that one day we will have a cure. Our strength begins with hope.

The Global Learning Conference is a gathering of doctors, professionals, patients and caregivers from around the world to learn about the most recent research and treatment options for the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders. We are looking for volunteers to assist with various shifts throughout the conference, including working with our kids and teens program, managing our awareness store, and also helping attendees and staff should unplanned need arise. Please email for more information about the various positions available! Thank you so much for your time and interest!